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Conducting a literature review: why do a literature review, why do a literature review.

  • How To Find "The Literature"
  • Found it -- Now What?

Besides the obvious reason for students -- because it is assigned! -- a literature review helps you explore the research that has come before you, to see how your research question has (or has not) already been addressed.

You identify:

  • core research in the field
  • experts in the subject area
  • methodology you may want to use (or avoid)
  • gaps in knowledge -- or where your research would fit in

It Also Helps You:

  • Publish and share your findings
  • Justify requests for grants and other funding
  • Identify best practices to inform practice
  • Set wider context for a program evaluation
  • Compile information to support community organizing

Great brief overview, from NCSU

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What is a Literature Review?

A literature or narrative review is a comprehensive review and analysis of the published literature on a specific topic or research question. The literature that is reviewed contains: books, articles, academic articles, conference proceedings, association papers, and dissertations. It contains the most pertinent studies and points to important past and current research and practices. It provides background and context, and shows how your research will contribute to the field. 

A literature review should: 

  • Provide a comprehensive and updated review of the literature;
  • Explain why this review has taken place;
  • Articulate a position or hypothesis;
  • Acknowledge and account for conflicting and corroborating points of view

From  S age Research Methods

Purpose of a Literature Review

A literature review can be written as an introduction to a study to:

  • Demonstrate how a study fills a gap in research
  • Compare a study with other research that's been done

Or it can be a separate work (a research article on its own) which:

  • Organizes or describes a topic
  • Describes variables within a particular issue/problem

Limitations of a Literature Review

Some of the limitations of a literature review are:

  • It's a snapshot in time. Unlike other reviews, this one has beginning, a middle and an end. There may be future developments that could make your work less relevant.
  • It may be too focused. Some niche studies may miss the bigger picture.
  • It can be difficult to be comprehensive. There is no way to make sure all the literature on a topic was considered.
  • It is easy to be biased if you stick to top tier journals. There may be other places where people are publishing exemplary research. Look to open access publications and conferences to reflect a more inclusive collection. Also, make sure to include opposing views (and not just supporting evidence).

Source: Grant, Maria J., and Andrew Booth. “A Typology of Reviews: An Analysis of 14 Review Types and Associated Methodologies.” Health Information & Libraries Journal, vol. 26, no. 2, June 2009, pp. 91–108. Wiley Online Library, doi:10.1111/j.1471-1842.2009.00848.x.

Meryl Brodsky : Communication and Information Studies

Hannah Chapman Tripp : Biology, Neuroscience

Carolyn Cunningham : Human Development & Family Sciences, Psychology, Sociology

Larayne Dallas : Engineering

Janelle Hedstrom : Special Education, Curriculum & Instruction, Ed Leadership & Policy ​

Susan Macicak : Linguistics

Imelda Vetter : Dell Medical School

For help in other subject areas, please see the guide to library specialists by subject .

Periodically, UT Libraries runs a workshop covering the basics and library support for literature reviews. While we try to offer these once per academic year, we find providing the recording to be helpful to community members who have missed the session. Following is the most recent recording of the workshop, Conducting a Literature Review. To view the recording, a UT login is required.

  • October 26, 2022 recording
  • Last Updated: Oct 26, 2022 2:49 PM
  • URL: https://guides.lib.utexas.edu/literaturereviews

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Literature reviews, what is a literature review, learning more about how to do a literature review.

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A literature review is a review and synthesis of existing research on a topic or research question. A literature review is meant to analyze the scholarly literature, make connections across writings and identify strengths, weaknesses, trends, and missing conversations. A literature review should address different aspects of a topic as it relates to your research question. A literature review goes beyond a description or summary of the literature you have read. 

  • Sage Research Methods Core Collection This link opens in a new window SAGE Research Methods supports research at all levels by providing material to guide users through every step of the research process. SAGE Research Methods is the ultimate methods library with more than 1000 books, reference works, journal articles, and instructional videos by world-leading academics from across the social sciences, including the largest collection of qualitative methods books available online from any scholarly publisher. – Publisher

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What is the Purpose of a Literature Review?

What is the Purpose of a Literature Review?

4-minute read

  • 23rd October 2023

If you’re writing a research paper or dissertation , then you’ll most likely need to include a comprehensive literature review . In this post, we’ll review the purpose of literature reviews, why they are so significant, and the specific elements to include in one. Literature reviews can:

1. Provide a foundation for current research.

2. Define key concepts and theories.

3. Demonstrate critical evaluation.

4. Show how research and methodologies have evolved.

5. Identify gaps in existing research.

6. Support your argument.

Keep reading to enter the exciting world of literature reviews!

What is a Literature Review?

A literature review is a critical summary and evaluation of the existing research (e.g., academic journal articles and books) on a specific topic. It is typically included as a separate section or chapter of a research paper or dissertation, serving as a contextual framework for a study. Literature reviews can vary in length depending on the subject and nature of the study, with most being about equal length to other sections or chapters included in the paper. Essentially, the literature review highlights previous studies in the context of your research and summarizes your insights in a structured, organized format. Next, let’s look at the overall purpose of a literature review.

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Literature reviews are considered an integral part of research across most academic subjects and fields. The primary purpose of a literature review in your study is to:

Provide a Foundation for Current Research

Since the literature review provides a comprehensive evaluation of the existing research, it serves as a solid foundation for your current study. It’s a way to contextualize your work and show how your research fits into the broader landscape of your specific area of study.  

Define Key Concepts and Theories

The literature review highlights the central theories and concepts that have arisen from previous research on your chosen topic. It gives your readers a more thorough understanding of the background of your study and why your research is particularly significant .

Demonstrate Critical Evaluation 

A comprehensive literature review shows your ability to critically analyze and evaluate a broad range of source material. And since you’re considering and acknowledging the contribution of key scholars alongside your own, it establishes your own credibility and knowledge.

Show How Research and Methodologies Have Evolved

Another purpose of literature reviews is to provide a historical perspective and demonstrate how research and methodologies have changed over time, especially as data collection methods and technology have advanced. And studying past methodologies allows you, as the researcher, to understand what did and did not work and apply that knowledge to your own research.  

Identify Gaps in Existing Research

Besides discussing current research and methodologies, the literature review should also address areas that are lacking in the existing literature. This helps further demonstrate the relevance of your own research by explaining why your study is necessary to fill the gaps.

Support Your Argument

A good literature review should provide evidence that supports your research questions and hypothesis. For example, your study may show that your research supports existing theories or builds on them in some way. Referencing previous related studies shows your work is grounded in established research and will ultimately be a contribution to the field.  

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Ensure your literature review is polished and ready for submission by having it professionally proofread and edited by our expert team. Our literature review editing services will help your research stand out and make an impact. Not convinced yet? Send in your free sample today and see for yourself! 

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  • UConn Library
  • Literature Review: The What, Why and How-to Guide
  • Introduction

Literature Review: The What, Why and How-to Guide — Introduction

  • Getting Started
  • How to Pick a Topic
  • Strategies to Find Sources
  • Evaluating Sources & Lit. Reviews
  • Tips for Writing Literature Reviews
  • Writing Literature Review: Useful Sites
  • Citation Resources
  • Other Academic Writings

What are Literature Reviews?

So, what is a literature review? "A literature review is an account of what has been published on a topic by accredited scholars and researchers. In writing the literature review, your purpose is to convey to your reader what knowledge and ideas have been established on a topic, and what their strengths and weaknesses are. As a piece of writing, the literature review must be defined by a guiding concept (e.g., your research objective, the problem or issue you are discussing, or your argumentative thesis). It is not just a descriptive list of the material available, or a set of summaries." Taylor, D.  The literature review: A few tips on conducting it . University of Toronto Health Sciences Writing Centre.

Goals of Literature Reviews

What are the goals of creating a Literature Review?  A literature could be written to accomplish different aims:

  • To develop a theory or evaluate an existing theory
  • To summarize the historical or existing state of a research topic
  • Identify a problem in a field of research 

Baumeister, R. F., & Leary, M. R. (1997). Writing narrative literature reviews .  Review of General Psychology , 1 (3), 311-320.

What kinds of sources require a Literature Review?

  • A research paper assigned in a course
  • A thesis or dissertation
  • A grant proposal
  • An article intended for publication in a journal

All these instances require you to collect what has been written about your research topic so that you can demonstrate how your own research sheds new light on the topic.

Types of Literature Reviews

What kinds of literature reviews are written?

Narrative review: The purpose of this type of review is to describe the current state of the research on a specific topic/research and to offer a critical analysis of the literature reviewed. Studies are grouped by research/theoretical categories, and themes and trends, strengths and weakness, and gaps are identified. The review ends with a conclusion section which summarizes the findings regarding the state of the research of the specific study, the gaps identify and if applicable, explains how the author's research will address gaps identify in the review and expand the knowledge on the topic reviewed.

  • Example : Predictors and Outcomes of U.S. Quality Maternity Leave: A Review and Conceptual Framework:  10.1177/08948453211037398  

Systematic review : "The authors of a systematic review use a specific procedure to search the research literature, select the studies to include in their review, and critically evaluate the studies they find." (p. 139). Nelson, L. K. (2013). Research in Communication Sciences and Disorders . Plural Publishing.

  • Example : The effect of leave policies on increasing fertility: a systematic review:  10.1057/s41599-022-01270-w

Meta-analysis : "Meta-analysis is a method of reviewing research findings in a quantitative fashion by transforming the data from individual studies into what is called an effect size and then pooling and analyzing this information. The basic goal in meta-analysis is to explain why different outcomes have occurred in different studies." (p. 197). Roberts, M. C., & Ilardi, S. S. (2003). Handbook of Research Methods in Clinical Psychology . Blackwell Publishing.

  • Example : Employment Instability and Fertility in Europe: A Meta-Analysis:  10.1215/00703370-9164737

Meta-synthesis : "Qualitative meta-synthesis is a type of qualitative study that uses as data the findings from other qualitative studies linked by the same or related topic." (p.312). Zimmer, L. (2006). Qualitative meta-synthesis: A question of dialoguing with texts .  Journal of Advanced Nursing , 53 (3), 311-318.

  • Example : Women’s perspectives on career successes and barriers: A qualitative meta-synthesis:  10.1177/05390184221113735

Literature Reviews in the Health Sciences

  • UConn Health subject guide on systematic reviews Explanation of the different review types used in health sciences literature as well as tools to help you find the right review type
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Literature Review in Research Writing

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Research on research? If you find this idea rather peculiar, know that nowadays, with the huge amount of information produced daily all around the world, it is becoming more and more difficult to keep up to date with all of it. In addition to the sheer amount of research, there is also its origin. We are witnessing the economic and intellectual emergence of countries like China, Brazil, Turkey, and United Arab Emirates, for example, that are producing scholarly literature in their own languages. So, apart from the effort of gathering information, there must also be translators prepared to unify all of it in a single language to be the object of the literature survey. At Elsevier, our team of translators is ready to support researchers by delivering high-quality scientific translations , in several languages, to serve their research – no matter the topic.

What is a literature review?

A literature review is a study – or, more accurately, a survey – involving scholarly material, with the aim to discuss published information about a specific topic or research question. Therefore, to write a literature review, it is compulsory that you are a real expert in the object of study. The results and findings will be published and made available to the public, namely scientists working in the same area of research.

How to Write a Literature Review

First of all, don’t forget that writing a literature review is a great responsibility. It’s a document that is expected to be highly reliable, especially concerning its sources and findings. You have to feel intellectually comfortable in the area of study and highly proficient in the target language; misconceptions and errors do not have a place in a document as important as a literature review. In fact, you might want to consider text editing services, like those offered at Elsevier, to make sure your literature is following the highest standards of text quality. You want to make sure your literature review is memorable by its novelty and quality rather than language errors.

Writing a literature review requires expertise but also organization. We cannot teach you about your topic of research, but we can provide a few steps to guide you through conducting a literature review:

  • Choose your topic or research question: It should not be too comprehensive or too limited. You have to complete your task within a feasible time frame.
  • Set the scope: Define boundaries concerning the number of sources, time frame to be covered, geographical area, etc.
  • Decide which databases you will use for your searches: In order to search the best viable sources for your literature review, use highly regarded, comprehensive databases to get a big picture of the literature related to your topic.
  • Search, search, and search: Now you’ll start to investigate the research on your topic. It’s critical that you keep track of all the sources. Start by looking at research abstracts in detail to see if their respective studies relate to or are useful for your own work. Next, search for bibliographies and references that can help you broaden your list of resources. Choose the most relevant literature and remember to keep notes of their bibliographic references to be used later on.
  • Review all the literature, appraising carefully it’s content: After reading the study’s abstract, pay attention to the rest of the content of the articles you deem the “most relevant.” Identify methodologies, the most important questions they address, if they are well-designed and executed, and if they are cited enough, etc.

If it’s the first time you’ve published a literature review, note that it is important to follow a special structure. Just like in a thesis, for example, it is expected that you have an introduction – giving the general idea of the central topic and organizational pattern – a body – which contains the actual discussion of the sources – and finally the conclusion or recommendations – where you bring forward whatever you have drawn from the reviewed literature. The conclusion may even suggest there are no agreeable findings and that the discussion should be continued.

Why are literature reviews important?

Literature reviews constantly feed new research, that constantly feeds literature reviews…and we could go on and on. The fact is, one acts like a force over the other and this is what makes science, as a global discipline, constantly develop and evolve. As a scientist, writing a literature review can be very beneficial to your career, and set you apart from the expert elite in your field of interest. But it also can be an overwhelming task, so don’t hesitate in contacting Elsevier for text editing services, either for profound edition or just a last revision. We guarantee the very highest standards. You can also save time by letting us suggest and make the necessary amendments to your manuscript, so that it fits the structural pattern of a literature review. Who knows how many worldwide researchers you will impact with your next perfectly written literature review.

Know more: How to Find a Gap in Research .

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What is a research gap

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A literature review surveys prior research published in books, scholarly articles, and any other sources relevant to a particular issue, area of research, or theory, and by so doing, provides a description, summary, and critical evaluation of these works in relation to the research problem being investigated. Literature reviews are designed to provide an overview of sources you have used in researching a particular topic and to demonstrate to your readers how your research fits within existing scholarship about the topic.

Fink, Arlene. Conducting Research Literature Reviews: From the Internet to Paper . Fourth edition. Thousand Oaks, CA: SAGE, 2014.

Importance of a Good Literature Review

A literature review may consist of simply a summary of key sources, but in the social sciences, a literature review usually has an organizational pattern and combines both summary and synthesis, often within specific conceptual categories . A summary is a recap of the important information of the source, but a synthesis is a re-organization, or a reshuffling, of that information in a way that informs how you are planning to investigate a research problem. The analytical features of a literature review might:

  • Give a new interpretation of old material or combine new with old interpretations,
  • Trace the intellectual progression of the field, including major debates,
  • Depending on the situation, evaluate the sources and advise the reader on the most pertinent or relevant research, or
  • Usually in the conclusion of a literature review, identify where gaps exist in how a problem has been researched to date.

Given this, the purpose of a literature review is to:

  • Place each work in the context of its contribution to understanding the research problem being studied.
  • Describe the relationship of each work to the others under consideration.
  • Identify new ways to interpret prior research.
  • Reveal any gaps that exist in the literature.
  • Resolve conflicts amongst seemingly contradictory previous studies.
  • Identify areas of prior scholarship to prevent duplication of effort.
  • Point the way in fulfilling a need for additional research.
  • Locate your own research within the context of existing literature [very important].

Fink, Arlene. Conducting Research Literature Reviews: From the Internet to Paper. 2nd ed. Thousand Oaks, CA: Sage, 2005; Hart, Chris. Doing a Literature Review: Releasing the Social Science Research Imagination . Thousand Oaks, CA: Sage Publications, 1998; Jesson, Jill. Doing Your Literature Review: Traditional and Systematic Techniques . Los Angeles, CA: SAGE, 2011; Knopf, Jeffrey W. "Doing a Literature Review." PS: Political Science and Politics 39 (January 2006): 127-132; Ridley, Diana. The Literature Review: A Step-by-Step Guide for Students . 2nd ed. Los Angeles, CA: SAGE, 2012.

Types of Literature Reviews

It is important to think of knowledge in a given field as consisting of three layers. First, there are the primary studies that researchers conduct and publish. Second are the reviews of those studies that summarize and offer new interpretations built from and often extending beyond the primary studies. Third, there are the perceptions, conclusions, opinion, and interpretations that are shared informally among scholars that become part of the body of epistemological traditions within the field.

In composing a literature review, it is important to note that it is often this third layer of knowledge that is cited as "true" even though it often has only a loose relationship to the primary studies and secondary literature reviews. Given this, while literature reviews are designed to provide an overview and synthesis of pertinent sources you have explored, there are a number of approaches you could adopt depending upon the type of analysis underpinning your study.

Argumentative Review This form examines literature selectively in order to support or refute an argument, deeply embedded assumption, or philosophical problem already established in the literature. The purpose is to develop a body of literature that establishes a contrarian viewpoint. Given the value-laden nature of some social science research [e.g., educational reform; immigration control], argumentative approaches to analyzing the literature can be a legitimate and important form of discourse. However, note that they can also introduce problems of bias when they are used to make summary claims of the sort found in systematic reviews [see below].

Integrative Review Considered a form of research that reviews, critiques, and synthesizes representative literature on a topic in an integrated way such that new frameworks and perspectives on the topic are generated. The body of literature includes all studies that address related or identical hypotheses or research problems. A well-done integrative review meets the same standards as primary research in regard to clarity, rigor, and replication. This is the most common form of review in the social sciences.

Historical Review Few things rest in isolation from historical precedent. Historical literature reviews focus on examining research throughout a period of time, often starting with the first time an issue, concept, theory, phenomena emerged in the literature, then tracing its evolution within the scholarship of a discipline. The purpose is to place research in a historical context to show familiarity with state-of-the-art developments and to identify the likely directions for future research.

Methodological Review A review does not always focus on what someone said [findings], but how they came about saying what they say [method of analysis]. Reviewing methods of analysis provides a framework of understanding at different levels [i.e. those of theory, substantive fields, research approaches, and data collection and analysis techniques], how researchers draw upon a wide variety of knowledge ranging from the conceptual level to practical documents for use in fieldwork in the areas of ontological and epistemological consideration, quantitative and qualitative integration, sampling, interviewing, data collection, and data analysis. This approach helps highlight ethical issues which you should be aware of and consider as you go through your own study.

Systematic Review This form consists of an overview of existing evidence pertinent to a clearly formulated research question, which uses pre-specified and standardized methods to identify and critically appraise relevant research, and to collect, report, and analyze data from the studies that are included in the review. The goal is to deliberately document, critically evaluate, and summarize scientifically all of the research about a clearly defined research problem . Typically it focuses on a very specific empirical question, often posed in a cause-and-effect form, such as "To what extent does A contribute to B?" This type of literature review is primarily applied to examining prior research studies in clinical medicine and allied health fields, but it is increasingly being used in the social sciences.

Theoretical Review The purpose of this form is to examine the corpus of theory that has accumulated in regard to an issue, concept, theory, phenomena. The theoretical literature review helps to establish what theories already exist, the relationships between them, to what degree the existing theories have been investigated, and to develop new hypotheses to be tested. Often this form is used to help establish a lack of appropriate theories or reveal that current theories are inadequate for explaining new or emerging research problems. The unit of analysis can focus on a theoretical concept or a whole theory or framework.

NOTE : Most often the literature review will incorporate some combination of types. For example, a review that examines literature supporting or refuting an argument, assumption, or philosophical problem related to the research problem will also need to include writing supported by sources that establish the history of these arguments in the literature.

Baumeister, Roy F. and Mark R. Leary. "Writing Narrative Literature Reviews."  Review of General Psychology 1 (September 1997): 311-320; Mark R. Fink, Arlene. Conducting Research Literature Reviews: From the Internet to Paper . 2nd ed. Thousand Oaks, CA: Sage, 2005; Hart, Chris. Doing a Literature Review: Releasing the Social Science Research Imagination . Thousand Oaks, CA: Sage Publications, 1998; Kennedy, Mary M. "Defining a Literature." Educational Researcher 36 (April 2007): 139-147; Petticrew, Mark and Helen Roberts. Systematic Reviews in the Social Sciences: A Practical Guide . Malden, MA: Blackwell Publishers, 2006; Torracro, Richard. "Writing Integrative Literature Reviews: Guidelines and Examples." Human Resource Development Review 4 (September 2005): 356-367; Rocco, Tonette S. and Maria S. Plakhotnik. "Literature Reviews, Conceptual Frameworks, and Theoretical Frameworks: Terms, Functions, and Distinctions." Human Ressource Development Review 8 (March 2008): 120-130; Sutton, Anthea. Systematic Approaches to a Successful Literature Review . Los Angeles, CA: Sage Publications, 2016.

Structure and Writing Style

I.  Thinking About Your Literature Review

The structure of a literature review should include the following in support of understanding the research problem :

  • An overview of the subject, issue, or theory under consideration, along with the objectives of the literature review,
  • Division of works under review into themes or categories [e.g. works that support a particular position, those against, and those offering alternative approaches entirely],
  • An explanation of how each work is similar to and how it varies from the others,
  • Conclusions as to which pieces are best considered in their argument, are most convincing of their opinions, and make the greatest contribution to the understanding and development of their area of research.

The critical evaluation of each work should consider :

  • Provenance -- what are the author's credentials? Are the author's arguments supported by evidence [e.g. primary historical material, case studies, narratives, statistics, recent scientific findings]?
  • Methodology -- were the techniques used to identify, gather, and analyze the data appropriate to addressing the research problem? Was the sample size appropriate? Were the results effectively interpreted and reported?
  • Objectivity -- is the author's perspective even-handed or prejudicial? Is contrary data considered or is certain pertinent information ignored to prove the author's point?
  • Persuasiveness -- which of the author's theses are most convincing or least convincing?
  • Validity -- are the author's arguments and conclusions convincing? Does the work ultimately contribute in any significant way to an understanding of the subject?

II.  Development of the Literature Review

Four Basic Stages of Writing 1.  Problem formulation -- which topic or field is being examined and what are its component issues? 2.  Literature search -- finding materials relevant to the subject being explored. 3.  Data evaluation -- determining which literature makes a significant contribution to the understanding of the topic. 4.  Analysis and interpretation -- discussing the findings and conclusions of pertinent literature.

Consider the following issues before writing the literature review: Clarify If your assignment is not specific about what form your literature review should take, seek clarification from your professor by asking these questions: 1.  Roughly how many sources would be appropriate to include? 2.  What types of sources should I review (books, journal articles, websites; scholarly versus popular sources)? 3.  Should I summarize, synthesize, or critique sources by discussing a common theme or issue? 4.  Should I evaluate the sources in any way beyond evaluating how they relate to understanding the research problem? 5.  Should I provide subheadings and other background information, such as definitions and/or a history? Find Models Use the exercise of reviewing the literature to examine how authors in your discipline or area of interest have composed their literature review sections. Read them to get a sense of the types of themes you might want to look for in your own research or to identify ways to organize your final review. The bibliography or reference section of sources you've already read, such as required readings in the course syllabus, are also excellent entry points into your own research. Narrow the Topic The narrower your topic, the easier it will be to limit the number of sources you need to read in order to obtain a good survey of relevant resources. Your professor will probably not expect you to read everything that's available about the topic, but you'll make the act of reviewing easier if you first limit scope of the research problem. A good strategy is to begin by searching the USC Libraries Catalog for recent books about the topic and review the table of contents for chapters that focuses on specific issues. You can also review the indexes of books to find references to specific issues that can serve as the focus of your research. For example, a book surveying the history of the Israeli-Palestinian conflict may include a chapter on the role Egypt has played in mediating the conflict, or look in the index for the pages where Egypt is mentioned in the text. Consider Whether Your Sources are Current Some disciplines require that you use information that is as current as possible. This is particularly true in disciplines in medicine and the sciences where research conducted becomes obsolete very quickly as new discoveries are made. However, when writing a review in the social sciences, a survey of the history of the literature may be required. In other words, a complete understanding the research problem requires you to deliberately examine how knowledge and perspectives have changed over time. Sort through other current bibliographies or literature reviews in the field to get a sense of what your discipline expects. You can also use this method to explore what is considered by scholars to be a "hot topic" and what is not.

III.  Ways to Organize Your Literature Review

Chronology of Events If your review follows the chronological method, you could write about the materials according to when they were published. This approach should only be followed if a clear path of research building on previous research can be identified and that these trends follow a clear chronological order of development. For example, a literature review that focuses on continuing research about the emergence of German economic power after the fall of the Soviet Union. By Publication Order your sources by publication chronology, then, only if the order demonstrates a more important trend. For instance, you could order a review of literature on environmental studies of brown fields if the progression revealed, for example, a change in the soil collection practices of the researchers who wrote and/or conducted the studies. Thematic [“conceptual categories”] A thematic literature review is the most common approach to summarizing prior research in the social and behavioral sciences. Thematic reviews are organized around a topic or issue, rather than the progression of time, although the progression of time may still be incorporated into a thematic review. For example, a review of the Internet’s impact on American presidential politics could focus on the development of online political satire. While the study focuses on one topic, the Internet’s impact on American presidential politics, it would still be organized chronologically reflecting technological developments in media. The difference in this example between a "chronological" and a "thematic" approach is what is emphasized the most: themes related to the role of the Internet in presidential politics. Note that more authentic thematic reviews tend to break away from chronological order. A review organized in this manner would shift between time periods within each section according to the point being made. Methodological A methodological approach focuses on the methods utilized by the researcher. For the Internet in American presidential politics project, one methodological approach would be to look at cultural differences between the portrayal of American presidents on American, British, and French websites. Or the review might focus on the fundraising impact of the Internet on a particular political party. A methodological scope will influence either the types of documents in the review or the way in which these documents are discussed.

Other Sections of Your Literature Review Once you've decided on the organizational method for your literature review, the sections you need to include in the paper should be easy to figure out because they arise from your organizational strategy. In other words, a chronological review would have subsections for each vital time period; a thematic review would have subtopics based upon factors that relate to the theme or issue. However, sometimes you may need to add additional sections that are necessary for your study, but do not fit in the organizational strategy of the body. What other sections you include in the body is up to you. However, only include what is necessary for the reader to locate your study within the larger scholarship about the research problem.

Here are examples of other sections, usually in the form of a single paragraph, you may need to include depending on the type of review you write:

  • Current Situation : Information necessary to understand the current topic or focus of the literature review.
  • Sources Used : Describes the methods and resources [e.g., databases] you used to identify the literature you reviewed.
  • History : The chronological progression of the field, the research literature, or an idea that is necessary to understand the literature review, if the body of the literature review is not already a chronology.
  • Selection Methods : Criteria you used to select (and perhaps exclude) sources in your literature review. For instance, you might explain that your review includes only peer-reviewed [i.e., scholarly] sources.
  • Standards : Description of the way in which you present your information.
  • Questions for Further Research : What questions about the field has the review sparked? How will you further your research as a result of the review?

IV.  Writing Your Literature Review

Once you've settled on how to organize your literature review, you're ready to write each section. When writing your review, keep in mind these issues.

Use Evidence A literature review section is, in this sense, just like any other academic research paper. Your interpretation of the available sources must be backed up with evidence [citations] that demonstrates that what you are saying is valid. Be Selective Select only the most important points in each source to highlight in the review. The type of information you choose to mention should relate directly to the research problem, whether it is thematic, methodological, or chronological. Related items that provide additional information, but that are not key to understanding the research problem, can be included in a list of further readings . Use Quotes Sparingly Some short quotes are appropriate if you want to emphasize a point, or if what an author stated cannot be easily paraphrased. Sometimes you may need to quote certain terminology that was coined by the author, is not common knowledge, or taken directly from the study. Do not use extensive quotes as a substitute for using your own words in reviewing the literature. Summarize and Synthesize Remember to summarize and synthesize your sources within each thematic paragraph as well as throughout the review. Recapitulate important features of a research study, but then synthesize it by rephrasing the study's significance and relating it to your own work and the work of others. Keep Your Own Voice While the literature review presents others' ideas, your voice [the writer's] should remain front and center. For example, weave references to other sources into what you are writing but maintain your own voice by starting and ending the paragraph with your own ideas and wording. Use Caution When Paraphrasing When paraphrasing a source that is not your own, be sure to represent the author's information or opinions accurately and in your own words. Even when paraphrasing an author’s work, you still must provide a citation to that work.

V.  Common Mistakes to Avoid

These are the most common mistakes made in reviewing social science research literature.

  • Sources in your literature review do not clearly relate to the research problem;
  • You do not take sufficient time to define and identify the most relevant sources to use in the literature review related to the research problem;
  • Relies exclusively on secondary analytical sources rather than including relevant primary research studies or data;
  • Uncritically accepts another researcher's findings and interpretations as valid, rather than examining critically all aspects of the research design and analysis;
  • Does not describe the search procedures that were used in identifying the literature to review;
  • Reports isolated statistical results rather than synthesizing them in chi-squared or meta-analytic methods; and,
  • Only includes research that validates assumptions and does not consider contrary findings and alternative interpretations found in the literature.

Cook, Kathleen E. and Elise Murowchick. “Do Literature Review Skills Transfer from One Course to Another?” Psychology Learning and Teaching 13 (March 2014): 3-11; Fink, Arlene. Conducting Research Literature Reviews: From the Internet to Paper . 2nd ed. Thousand Oaks, CA: Sage, 2005; Hart, Chris. Doing a Literature Review: Releasing the Social Science Research Imagination . Thousand Oaks, CA: Sage Publications, 1998; Jesson, Jill. Doing Your Literature Review: Traditional and Systematic Techniques . London: SAGE, 2011; Literature Review Handout. Online Writing Center. Liberty University; Literature Reviews. The Writing Center. University of North Carolina; Onwuegbuzie, Anthony J. and Rebecca Frels. Seven Steps to a Comprehensive Literature Review: A Multimodal and Cultural Approach . Los Angeles, CA: SAGE, 2016; Ridley, Diana. The Literature Review: A Step-by-Step Guide for Students . 2nd ed. Los Angeles, CA: SAGE, 2012; Randolph, Justus J. “A Guide to Writing the Dissertation Literature Review." Practical Assessment, Research, and Evaluation. vol. 14, June 2009; Sutton, Anthea. Systematic Approaches to a Successful Literature Review . Los Angeles, CA: Sage Publications, 2016; Taylor, Dena. The Literature Review: A Few Tips On Conducting It. University College Writing Centre. University of Toronto; Writing a Literature Review. Academic Skills Centre. University of Canberra.

Writing Tip

Break Out of Your Disciplinary Box!

Thinking interdisciplinarily about a research problem can be a rewarding exercise in applying new ideas, theories, or concepts to an old problem. For example, what might cultural anthropologists say about the continuing conflict in the Middle East? In what ways might geographers view the need for better distribution of social service agencies in large cities than how social workers might study the issue? You don’t want to substitute a thorough review of core research literature in your discipline for studies conducted in other fields of study. However, particularly in the social sciences, thinking about research problems from multiple vectors is a key strategy for finding new solutions to a problem or gaining a new perspective. Consult with a librarian about identifying research databases in other disciplines; almost every field of study has at least one comprehensive database devoted to indexing its research literature.

Frodeman, Robert. The Oxford Handbook of Interdisciplinarity . New York: Oxford University Press, 2010.

Another Writing Tip

Don't Just Review for Content!

While conducting a review of the literature, maximize the time you devote to writing this part of your paper by thinking broadly about what you should be looking for and evaluating. Review not just what scholars are saying, but how are they saying it. Some questions to ask:

  • How are they organizing their ideas?
  • What methods have they used to study the problem?
  • What theories have been used to explain, predict, or understand their research problem?
  • What sources have they cited to support their conclusions?
  • How have they used non-textual elements [e.g., charts, graphs, figures, etc.] to illustrate key points?

When you begin to write your literature review section, you'll be glad you dug deeper into how the research was designed and constructed because it establishes a means for developing more substantial analysis and interpretation of the research problem.

Hart, Chris. Doing a Literature Review: Releasing the Social Science Research Imagination . Thousand Oaks, CA: Sage Publications, 1 998.

Yet Another Writing Tip

When Do I Know I Can Stop Looking and Move On?

Here are several strategies you can utilize to assess whether you've thoroughly reviewed the literature:

  • Look for repeating patterns in the research findings . If the same thing is being said, just by different people, then this likely demonstrates that the research problem has hit a conceptual dead end. At this point consider: Does your study extend current research?  Does it forge a new path? Or, does is merely add more of the same thing being said?
  • Look at sources the authors cite to in their work . If you begin to see the same researchers cited again and again, then this is often an indication that no new ideas have been generated to address the research problem.
  • Search Google Scholar to identify who has subsequently cited leading scholars already identified in your literature review [see next sub-tab]. This is called citation tracking and there are a number of sources that can help you identify who has cited whom, particularly scholars from outside of your discipline. Here again, if the same authors are being cited again and again, this may indicate no new literature has been written on the topic.

Onwuegbuzie, Anthony J. and Rebecca Frels. Seven Steps to a Comprehensive Literature Review: A Multimodal and Cultural Approach . Los Angeles, CA: Sage, 2016; Sutton, Anthea. Systematic Approaches to a Successful Literature Review . Los Angeles, CA: Sage Publications, 2016.

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A Guide to Literature Reviews

Importance of a good literature review.

  • Conducting the Literature Review
  • Structure and Writing Style
  • Types of Literature Reviews
  • Citation Management Software This link opens in a new window
  • Acknowledgements

A literature review is not only a summary of key sources, but  has an organizational pattern which combines both summary and synthesis, often within specific conceptual categories . A summary is a recap of the important information of the source, but a synthesis is a re-organization, or a reshuffling, of that information in a way that informs how you are planning to investigate a research problem. The analytical features of a literature review might:

  • Give a new interpretation of old material or combine new with old interpretations,
  • Trace the intellectual progression of the field, including major debates,
  • Depending on the situation, evaluate the sources and advise the reader on the most pertinent or relevant research, or
  • Usually in the conclusion of a literature review, identify where gaps exist in how a problem has been researched to date.

The purpose of a literature review is to:

  • Place each work in the context of its contribution to understanding the research problem being studied.
  • Describe the relationship of each work to the others under consideration.
  • Identify new ways to interpret prior research.
  • Reveal any gaps that exist in the literature.
  • Resolve conflicts amongst seemingly contradictory previous studies.
  • Identify areas of prior scholarship to prevent duplication of effort.
  • Point the way in fulfilling a need for additional research.
  • Locate your own research within the context of existing literature [very important].
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Why is it important to do a literature review in research?

Why is it important to do a literature review in research?

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The importance of scientific communication in the healthcare industry

importance and role of biostatistics in clinical research, biostatistics in public health, biostatistics in pharmacy, biostatistics in nursing,biostatistics in clinical trials,clinical biostatistics

The Importance and Role of Biostatistics in Clinical Research

 “A substantive, thorough, sophisticated literature review is a precondition for doing substantive, thorough, sophisticated research”. Boote and Baile 2005

Authors of manuscripts treat writing a literature review as a routine work or a mere formality. But a seasoned one knows the purpose and importance of a well-written literature review.  Since it is one of the basic needs for researches at any level, they have to be done vigilantly. Only then the reader will know that the basics of research have not been neglected.

Importance of Literature Review In Research

The aim of any literature review is to summarize and synthesize the arguments and ideas of existing knowledge in a particular field without adding any new contributions.   Being built on existing knowledge they help the researcher to even turn the wheels of the topic of research.  It is possible only with profound knowledge of what is wrong in the existing findings in detail to overpower them.  For other researches, the literature review gives the direction to be headed for its success. 

The common perception of literature review and reality:

As per the common belief, literature reviews are only a summary of the sources related to the research. And many authors of scientific manuscripts believe that they are only surveys of what are the researches are done on the chosen topic.  But on the contrary, it uses published information from pertinent and relevant sources like

  • Scholarly books
  • Scientific papers
  • Latest studies in the field
  • Established school of thoughts
  • Relevant articles from renowned scientific journals

and many more for a field of study or theory or a particular problem to do the following:

  • Summarize into a brief account of all information
  • Synthesize the information by restructuring and reorganizing
  • Critical evaluation of a concept or a school of thought or ideas
  • Familiarize the authors to the extent of knowledge in the particular field
  • Encapsulate
  • Compare & contrast

By doing the above on the relevant information, it provides the reader of the scientific manuscript with the following for a better understanding of it:

  • It establishes the authors’  in-depth understanding and knowledge of their field subject
  • It gives the background of the research
  • Portrays the scientific manuscript plan of examining the research result
  • Illuminates on how the knowledge has changed within the field
  • Highlights what has already been done in a particular field
  • Information of the generally accepted facts, emerging and current state of the topic of research
  • Identifies the research gap that is still unexplored or under-researched fields
  • Demonstrates how the research fits within a larger field of study
  • Provides an overview of the sources explored during the research of a particular topic

Importance of literature review in research:

The importance of literature review in scientific manuscripts can be condensed into an analytical feature to enable the multifold reach of its significance.  It adds value to the legitimacy of the research in many ways:

  • Provides the interpretation of existing literature in light of updated developments in the field to help in establishing the consistency in knowledge and relevancy of existing materials
  • It helps in calculating the impact of the latest information in the field by mapping their progress of knowledge.
  • It brings out the dialects of contradictions between various thoughts within the field to establish facts
  • The research gaps scrutinized initially are further explored to establish the latest facts of theories to add value to the field
  • Indicates the current research place in the schema of a particular field
  • Provides information for relevancy and coherency to check the research
  • Apart from elucidating the continuance of knowledge, it also points out areas that require further investigation and thus aid as a starting point of any future research
  • Justifies the research and sets up the research question
  • Sets up a theoretical framework comprising the concepts and theories of the research upon which its success can be judged
  • Helps to adopt a more appropriate methodology for the research by examining the strengths and weaknesses of existing research in the same field
  • Increases the significance of the results by comparing it with the existing literature
  • Provides a point of reference by writing the findings in the scientific manuscript
  • Helps to get the due credit from the audience for having done the fact-finding and fact-checking mission in the scientific manuscripts
  • The more the reference of relevant sources of it could increase more of its trustworthiness with the readers
  • Helps to prevent plagiarism by tailoring and uniquely tweaking the scientific manuscript not to repeat other’s original idea
  • By preventing plagiarism , it saves the scientific manuscript from rejection and thus also saves a lot of time and money
  • Helps to evaluate, condense and synthesize gist in the author’s own words to sharpen the research focus
  • Helps to compare and contrast to  show the originality and uniqueness of the research than that of the existing other researches
  • Rationalizes the need for conducting the particular research in a specified field
  • Helps to collect data accurately for allowing any new methodology of research than the existing ones
  • Enables the readers of the manuscript to answer the following questions of its readers for its better chances for publication
  • What do the researchers know?
  • What do they not know?
  • Is the scientific manuscript reliable and trustworthy?
  • What are the knowledge gaps of the researcher?

22. It helps the readers to identify the following for further reading of the scientific manuscript:

  • What has been already established, discredited and accepted in the particular field of research
  • Areas of controversy and conflicts among different schools of thought
  • Unsolved problems and issues in the connected field of research
  • The emerging trends and approaches
  • How the research extends, builds upon and leaves behind from the previous research

A profound literature review with many relevant sources of reference will enhance the chances of the scientific manuscript publication in renowned and reputed scientific journals .

References:

http://www.math.montana.edu/jobo/phdprep/phd6.pdf

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Reviewing literature for research: Doing it the right way

Shital amin poojary.

Department of Dermatology, K J Somaiya Medical College, Mumbai, Maharashtra, India

Jimish Deepak Bagadia

In an era of information overload, it is important to know how to obtain the required information and also to ensure that it is reliable information. Hence, it is essential to understand how to perform a systematic literature search. This article focuses on reliable literature sources and how to make optimum use of these in dermatology and venereology.

INTRODUCTION

A thorough review of literature is not only essential for selecting research topics, but also enables the right applicability of a research project. Most importantly, a good literature search is the cornerstone of practice of evidence based medicine. Today, everything is available at the click of a mouse or at the tip of the fingertips (or the stylus). Google is often the Go-To search website, the supposed answer to all questions in the universe. However, the deluge of information available comes with its own set of problems; how much of it is actually reliable information? How much are the search results that the search string threw up actually relevant? Did we actually find what we were looking for? Lack of a systematic approach can lead to a literature review ending up as a time-consuming and at times frustrating process. Hence, whether it is for research projects, theses/dissertations, case studies/reports or mere wish to obtain information; knowing where to look, and more importantly, how to look, is of prime importance today.

Literature search

Fink has defined research literature review as a “systematic, explicit and reproducible method for identifying, evaluating, and synthesizing the existing body of completed and recorded work produced by researchers, scholars and practitioners.”[ 1 ]

Review of research literature can be summarized into a seven step process: (i) Selecting research questions/purpose of the literature review (ii) Selecting your sources (iii) Choosing search terms (iv) Running your search (v) Applying practical screening criteria (vi) Applying methodological screening criteria/quality appraisal (vii) Synthesizing the results.[ 1 ]

This article will primarily concentrate on refining techniques of literature search.

Sources for literature search are enumerated in Table 1 .

Sources for literature search

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PubMed is currently the most widely used among these as it contains over 23 million citations for biomedical literature and has been made available free by National Center for Biotechnology Information (NCBI), U.S. National Library of Medicine. However, the availability of free full text articles depends on the sources. Use of options such as advanced search, medical subject headings (MeSH) terms, free full text, PubMed tutorials, and single citation matcher makes the database extremely user-friendly [ Figure 1 ]. It can also be accessed on the go through mobiles using “PubMed Mobile.” One can also create own account in NCBI to save searches and to use certain PubMed tools.

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PubMed home page showing location of different tools which can be used for an efficient literature search

Tips for efficient use of PubMed search:[ 2 , 3 , 4 ]

Use of field and Boolean operators

When one searches using key words, all articles containing the words show up, many of which may not be related to the topic. Hence, the use of operators while searching makes the search more specific and less cumbersome. Operators are of two types: Field operators and Boolean operators, the latter enabling us to combine more than one concept, thereby making the search highly accurate. A few key operators that can be used in PubMed are shown in Tables ​ Tables2 2 and ​ and3 3 and illustrated in Figures ​ Figures2 2 and ​ and3 3 .

Field operators used in PubMed search

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Boolean operators used in PubMed search

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PubMed search results page showing articles on donovanosis using the field operator [TIAB]; it shows all articles which have the keyword “donovanosis” in either title or abstract of the article

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PubMed search using Boolean operators ‘AND’, ‘NOT’; To search for articles on treatment of lepra reaction other than steroids, after clicking the option ‘Advanced search’ on the home page, one can build the search using ‘AND’ option for treatment and ‘NOT’ option for steroids to omit articles on steroid treatment in lepra reaction

Use of medical subject headings terms

These are very specific and standardized terms used by indexers to describe every article in PubMed and are added to the record of every article. A search using MeSH will show all articles about the topic (or keywords), but will not show articles only containing these keywords (these articles may be about an entirely different topic, but still may contain your keywords in another context in any part of the article). This will make your search more specific. Within the topic, specific subheadings can be added to the search builder to refine your search [ Figure 4 ]. For example, MeSH terms for treatment are therapy and therapeutics.

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PubMed search using medical subject headings (MeSH) terms for management of gonorrhea. Click on MeSH database ( Figure 1 ) →In the MeSH search box type gonorrhea and click search. Under the MeSH term gonorrhea, there will be a list of subheadings; therapy, prevention and control, click the relevant check boxes and add to search builder →Click on search →All articles on therapy, prevention and control of gonorrhea will be displayed. Below the subheadings, there are two options: (1) Restrict to medical subject headings (MeSH) major topic and (2) do not include MeSH terms found below this term in the MeSH hierarchy. These can be used to further refine the search results so that only articles which are majorly about treatment of gonorrhea will be displayed

Two additional options can be used to further refine MeSH searches. These are located below the subheadings for a MeSH term: (1) Restrict to MeSH major topic; checking this box will retrieve articles which are majorly about the search term and are therefore, more focused and (2) Do not include MeSH terms found below this term in the MeSH hierarchy. This option will again give you more focused articles as it excludes the lower specific terms [ Figure 4 ].

Similar feature is available with Cochrane library (also called MeSH), EMBASE (known as EMTREE) and PsycINFO (Thesaurus of Psychological Index Terms).

Saving your searches

Any search that one has performed can be saved by using the ‘Send to’ option and can be saved as a simple word file [ Figure 5 ]. Alternatively, the ‘Save Search’ button (just below the search box) can be used. However, it is essential to set up an NCBI account and log in to NCBI for this. One can even choose to have E-mail updates of new articles in the topic of interest.

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Saving PubMed searches. A simple option is to click on the dropdown box next to ‘Send to’ option and then choose among the options. It can be saved as a text or word file by choosing ‘File’ option. Another option is the “Save search” option below the search box but this will require logging into your National Center for Biotechnology Information account. This however allows you to set up alerts for E-mail updates for new articles

Single citation matcher

This is another important tool that helps to find the genuine original source of a particular research work (when few details are known about the title/author/publication date/place/journal) and cite the reference in the most correct manner [ Figure 6 ].

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Single citation matcher: Click on “Single citation matcher” on PubMed Home page. Type available details of the required reference in the boxes to get the required citation

Full text articles

In any search clicking on the link “free full text” (if present) gives you free access to the article. In some instances, though the published article may not be available free, the author manuscript may be available free of charge. Furthermore, PubMed Central articles are available free of charge.

Managing filters

Filters can be used to refine a search according to type of article required or subjects of research. One can specify the type of article required such as clinical trial, reviews, free full text; these options are available on a typical search results page. Further specialized filters are available under “manage filters:” e.g., articles confined to certain age groups (properties option), “Links” to other databases, article specific to particular journals, etc. However, one needs to have an NCBI account and log in to access this option [ Figure 7 ].

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Managing filters. Simple filters are available on the ‘search results’ page. One can choose type of article, e.g., clinical trial, reviews etc. Further options are available in the “Manage filters” option, but this requires logging into National Center for Biotechnology Information account

The Cochrane library

Although reviews are available in PubMed, for systematic reviews and meta-analysis, Cochrane library is a much better resource. The Cochrane library is a collection of full length systematic reviews, which can be accessed for free in India, thanks to Indian Council of Medical Research renewing the license up to 2016, benefitting users all over India. It is immensely helpful in finding detailed high quality research work done in a particular field/topic [ Figure 8 ].

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Cochrane library is a useful resource for reliable, systematic reviews. One can choose the type of reviews required, including trials

An important tool that must be used while searching for research work is screening. Screening helps to improve the accuracy of search results. It is of two types: (1) Practical: To identify a broad range of potentially useful studies. Examples: Date of publication (last 5 years only; gives you most recent updates), participants or subjects (humans above 18 years), publication language (English only) (2) methodological: To identify best available studies (for example, excluding studies not involving control group or studies with only randomized control trials).

Selecting the right quality of literature is the key to successful research literature review. The quality can be estimated by what is known as “The Evidence Pyramid.” The level of evidence of references obtained from the aforementioned search tools are depicted in Figure 9 . Systematic reviews obtained from Cochrane library constitute level 1 evidence.

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Evidence pyramid: Depicting the level of evidence of references obtained from the aforementioned search tools

Thus, a systematic literature review can help not only in setting up the basis of a good research with optimal use of available information, but also in practice of evidence-based medicine.

Source of Support: Nil.

Conflict of Interest: None declared.

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Conducting a Literature Review

Benefits of conducting a literature review.

  • Steps in Conducting a Literature Review
  • Summary of the Process
  • Additional Resources
  • Literature Review Tutorial by American University Library
  • The Literature Review: A Few Tips On Conducting It by University of Toronto
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While there might be many reasons for conducting a literature review, following are four key outcomes of doing the review.

Assessment of the current state of research on a topic . This is probably the most obvious value of the literature review. Once a researcher has determined an area to work with for a research project, a search of relevant information sources will help determine what is already known about the topic and how extensively the topic has already been researched.

Identification of the experts on a particular topic . One of the additional benefits derived from doing the literature review is that it will quickly reveal which researchers have written the most on a particular topic and are, therefore, probably the experts on the topic. Someone who has written twenty articles on a topic or on related topics is more than likely more knowledgeable than someone who has written a single article. This same writer will likely turn up as a reference in most of the other articles written on the same topic. From the number of articles written by the author and the number of times the writer has been cited by other authors, a researcher will be able to assume that the particular author is an expert in the area and, thus, a key resource for consultation in the current research to be undertaken.

Identification of key questions about a topic that need further research . In many cases a researcher may discover new angles that need further exploration by reviewing what has already been written on a topic. For example, research may suggest that listening to music while studying might lead to better retention of ideas, but the research might not have assessed whether a particular style of music is more beneficial than another. A researcher who is interested in pursuing this topic would then do well to follow up existing studies with a new study, based on previous research, that tries to identify which styles of music are most beneficial to retention.

Determination of methodologies used in past studies of the same or similar topics.  It is often useful to review the types of studies that previous researchers have launched as a means of determining what approaches might be of most benefit in further developing a topic. By the same token, a review of previously conducted studies might lend itself to researchers determining a new angle for approaching research.

Upon completion of the literature review, a researcher should have a solid foundation of knowledge in the area and a good feel for the direction any new research should take. Should any additional questions arise during the course of the research, the researcher will know which experts to consult in order to quickly clear up those questions.

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What is a literature review?

A literature review is an integrated analysis -- not just a summary-- of scholarly writings and other relevant evidence related directly to your research question.  That is, it represents a synthesis of the evidence that provides background information on your topic and shows a association between the evidence and your research question.

A literature review may be a stand alone work or the introduction to a larger research paper, depending on the assignment.  Rely heavily on the guidelines your instructor has given you.

Why is it important?

A literature review is important because it:

  • Explains the background of research on a topic.
  • Demonstrates why a topic is significant to a subject area.
  • Discovers relationships between research studies/ideas.
  • Identifies major themes, concepts, and researchers on a topic.
  • Identifies critical gaps and points of disagreement.
  • Discusses further research questions that logically come out of the previous studies.

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1. Choose a topic. Define your research question.

Your literature review should be guided by your central research question.  The literature represents background and research developments related to a specific research question, interpreted and analyzed by you in a synthesized way.

  • Make sure your research question is not too broad or too narrow.  Is it manageable?
  • Begin writing down terms that are related to your question. These will be useful for searches later.
  • If you have the opportunity, discuss your topic with your professor and your class mates.

2. Decide on the scope of your review

How many studies do you need to look at? How comprehensive should it be? How many years should it cover? 

  • This may depend on your assignment.  How many sources does the assignment require?

3. Select the databases you will use to conduct your searches.

Make a list of the databases you will search. 

Where to find databases:

  • use the tabs on this guide
  • Find other databases in the Nursing Information Resources web page
  • More on the Medical Library web page
  • ... and more on the Yale University Library web page

4. Conduct your searches to find the evidence. Keep track of your searches.

  • Use the key words in your question, as well as synonyms for those words, as terms in your search. Use the database tutorials for help.
  • Save the searches in the databases. This saves time when you want to redo, or modify, the searches. It is also helpful to use as a guide is the searches are not finding any useful results.
  • Review the abstracts of research studies carefully. This will save you time.
  • Use the bibliographies and references of research studies you find to locate others.
  • Check with your professor, or a subject expert in the field, if you are missing any key works in the field.
  • Ask your librarian for help at any time.
  • Use a citation manager, such as EndNote as the repository for your citations. See the EndNote tutorials for help.

Review the literature

Some questions to help you analyze the research:

  • What was the research question of the study you are reviewing? What were the authors trying to discover?
  • Was the research funded by a source that could influence the findings?
  • What were the research methodologies? Analyze its literature review, the samples and variables used, the results, and the conclusions.
  • Does the research seem to be complete? Could it have been conducted more soundly? What further questions does it raise?
  • If there are conflicting studies, why do you think that is?
  • How are the authors viewed in the field? Has this study been cited? If so, how has it been analyzed?

Tips: 

  • Review the abstracts carefully.  
  • Keep careful notes so that you may track your thought processes during the research process.
  • Create a matrix of the studies for easy analysis, and synthesis, across all of the studies.
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Research Methods

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Literature Review

  • What is a Literature Review?
  • What is NOT a Literature Review?
  • Purposes of a Literature Review
  • Types of Literature Reviews
  • Literature Reviews vs. Systematic Reviews
  • Systematic vs. Meta-Analysis

Literature Review  is a comprehensive survey of the works published in a particular field of study or line of research, usually over a specific period of time, in the form of an in-depth, critical bibliographic essay or annotated list in which attention is drawn to the most significant works.

Also, we can define a literature review as the collected body of scholarly works related to a topic:

  • Summarizes and analyzes previous research relevant to a topic
  • Includes scholarly books and articles published in academic journals
  • Can be an specific scholarly paper or a section in a research paper

The objective of a Literature Review is to find previous published scholarly works relevant to an specific topic

  • Help gather ideas or information
  • Keep up to date in current trends and findings
  • Help develop new questions

A literature review is important because it:

  • Explains the background of research on a topic.
  • Demonstrates why a topic is significant to a subject area.
  • Helps focus your own research questions or problems
  • Discovers relationships between research studies/ideas.
  • Suggests unexplored ideas or populations
  • Identifies major themes, concepts, and researchers on a topic.
  • Tests assumptions; may help counter preconceived ideas and remove unconscious bias.
  • Identifies critical gaps, points of disagreement, or potentially flawed methodology or theoretical approaches.
  • Indicates potential directions for future research.

All content in this section is from Literature Review Research from Old Dominion University 

Keep in mind the following, a literature review is NOT:

Not an essay 

Not an annotated bibliography  in which you summarize each article that you have reviewed.  A literature review goes beyond basic summarizing to focus on the critical analysis of the reviewed works and their relationship to your research question.

Not a research paper   where you select resources to support one side of an issue versus another.  A lit review should explain and consider all sides of an argument in order to avoid bias, and areas of agreement and disagreement should be highlighted.

A literature review serves several purposes. For example, it

  • provides thorough knowledge of previous studies; introduces seminal works.
  • helps focus one’s own research topic.
  • identifies a conceptual framework for one’s own research questions or problems; indicates potential directions for future research.
  • suggests previously unused or underused methodologies, designs, quantitative and qualitative strategies.
  • identifies gaps in previous studies; identifies flawed methodologies and/or theoretical approaches; avoids replication of mistakes.
  • helps the researcher avoid repetition of earlier research.
  • suggests unexplored populations.
  • determines whether past studies agree or disagree; identifies controversy in the literature.
  • tests assumptions; may help counter preconceived ideas and remove unconscious bias.

As Kennedy (2007) notes*, it is important to think of knowledge in a given field as consisting of three layers. First, there are the primary studies that researchers conduct and publish. Second are the reviews of those studies that summarize and offer new interpretations built from and often extending beyond the original studies. Third, there are the perceptions, conclusions, opinion, and interpretations that are shared informally that become part of the lore of field. In composing a literature review, it is important to note that it is often this third layer of knowledge that is cited as "true" even though it often has only a loose relationship to the primary studies and secondary literature reviews.

Given this, while literature reviews are designed to provide an overview and synthesis of pertinent sources you have explored, there are several approaches to how they can be done, depending upon the type of analysis underpinning your study. Listed below are definitions of types of literature reviews:

Argumentative Review      This form examines literature selectively in order to support or refute an argument, deeply imbedded assumption, or philosophical problem already established in the literature. The purpose is to develop a body of literature that establishes a contrarian viewpoint. Given the value-laden nature of some social science research [e.g., educational reform; immigration control], argumentative approaches to analyzing the literature can be a legitimate and important form of discourse. However, note that they can also introduce problems of bias when they are used to to make summary claims of the sort found in systematic reviews.

Integrative Review      Considered a form of research that reviews, critiques, and synthesizes representative literature on a topic in an integrated way such that new frameworks and perspectives on the topic are generated. The body of literature includes all studies that address related or identical hypotheses. A well-done integrative review meets the same standards as primary research in regard to clarity, rigor, and replication.

Historical Review      Few things rest in isolation from historical precedent. Historical reviews are focused on examining research throughout a period of time, often starting with the first time an issue, concept, theory, phenomena emerged in the literature, then tracing its evolution within the scholarship of a discipline. The purpose is to place research in a historical context to show familiarity with state-of-the-art developments and to identify the likely directions for future research.

Methodological Review      A review does not always focus on what someone said [content], but how they said it [method of analysis]. This approach provides a framework of understanding at different levels (i.e. those of theory, substantive fields, research approaches and data collection and analysis techniques), enables researchers to draw on a wide variety of knowledge ranging from the conceptual level to practical documents for use in fieldwork in the areas of ontological and epistemological consideration, quantitative and qualitative integration, sampling, interviewing, data collection and data analysis, and helps highlight many ethical issues which we should be aware of and consider as we go through our study.

Systematic Review      This form consists of an overview of existing evidence pertinent to a clearly formulated research question, which uses pre-specified and standardized methods to identify and critically appraise relevant research, and to collect, report, and analyse data from the studies that are included in the review. Typically it focuses on a very specific empirical question, often posed in a cause-and-effect form, such as "To what extent does A contribute to B?"

Theoretical Review      The purpose of this form is to concretely examine the corpus of theory that has accumulated in regard to an issue, concept, theory, phenomena. The theoretical literature review help establish what theories already exist, the relationships between them, to what degree the existing theories have been investigated, and to develop new hypotheses to be tested. Often this form is used to help establish a lack of appropriate theories or reveal that current theories are inadequate for explaining new or emerging research problems. The unit of analysis can focus on a theoretical concept or a whole theory or framework.

* Kennedy, Mary M. "Defining a Literature."  Educational Researcher  36 (April 2007): 139-147.

All content in this section is from The Literature Review created by Dr. Robert Larabee USC

Robinson, P. and Lowe, J. (2015),  Literature reviews vs systematic reviews.  Australian and New Zealand Journal of Public Health, 39: 103-103. doi: 10.1111/1753-6405.12393

importance of literature review in a research

What's in the name? The difference between a Systematic Review and a Literature Review, and why it matters . By Lynn Kysh from University of Southern California

importance of literature review in a research

Systematic review or meta-analysis?

A  systematic review  answers a defined research question by collecting and summarizing all empirical evidence that fits pre-specified eligibility criteria.

A  meta-analysis  is the use of statistical methods to summarize the results of these studies.

Systematic reviews, just like other research articles, can be of varying quality. They are a significant piece of work (the Centre for Reviews and Dissemination at York estimates that a team will take 9-24 months), and to be useful to other researchers and practitioners they should have:

  • clearly stated objectives with pre-defined eligibility criteria for studies
  • explicit, reproducible methodology
  • a systematic search that attempts to identify all studies
  • assessment of the validity of the findings of the included studies (e.g. risk of bias)
  • systematic presentation, and synthesis, of the characteristics and findings of the included studies

Not all systematic reviews contain meta-analysis. 

Meta-analysis is the use of statistical methods to summarize the results of independent studies. By combining information from all relevant studies, meta-analysis can provide more precise estimates of the effects of health care than those derived from the individual studies included within a review.  More information on meta-analyses can be found in  Cochrane Handbook, Chapter 9 .

A meta-analysis goes beyond critique and integration and conducts secondary statistical analysis on the outcomes of similar studies.  It is a systematic review that uses quantitative methods to synthesize and summarize the results.

An advantage of a meta-analysis is the ability to be completely objective in evaluating research findings.  Not all topics, however, have sufficient research evidence to allow a meta-analysis to be conducted.  In that case, an integrative review is an appropriate strategy. 

Some of the content in this section is from Systematic reviews and meta-analyses: step by step guide created by Kate McAllister.

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  • Joanna Smith 1 ,
  • Helen Noble 2
  • 1 School of Healthcare, University of Leeds , Leeds , UK
  • 2 School of Nursing and Midwifery, Queens's University Belfast , Belfast , UK
  • Correspondence to Dr Joanna Smith , School of Healthcare, University of Leeds, Leeds LS2 9JT, UK; j.e.smith1{at}leeds.ac.uk

https://doi.org/10.1136/eb-2015-102252

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Implementing evidence into practice requires nurses to identify, critically appraise and synthesise research. This may require a comprehensive literature review: this article aims to outline the approaches and stages required and provides a working example of a published review.

Are there different approaches to undertaking a literature review?

What stages are required to undertake a literature review.

The rationale for the review should be established; consider why the review is important and relevant to patient care/safety or service delivery. For example, Noble et al 's 4 review sought to understand and make recommendations for practice and research in relation to dialysis refusal and withdrawal in patients with end-stage renal disease, an area of care previously poorly described. If appropriate, highlight relevant policies and theoretical perspectives that might guide the review. Once the key issues related to the topic, including the challenges encountered in clinical practice, have been identified formulate a clear question, and/or develop an aim and specific objectives. The type of review undertaken is influenced by the purpose of the review and resources available. However, the stages or methods used to undertake a review are similar across approaches and include:

Formulating clear inclusion and exclusion criteria, for example, patient groups, ages, conditions/treatments, sources of evidence/research designs;

Justifying data bases and years searched, and whether strategies including hand searching of journals, conference proceedings and research not indexed in data bases (grey literature) will be undertaken;

Developing search terms, the PICU (P: patient, problem or population; I: intervention; C: comparison; O: outcome) framework is a useful guide when developing search terms;

Developing search skills (eg, understanding Boolean Operators, in particular the use of AND/OR) and knowledge of how data bases index topics (eg, MeSH headings). Working with a librarian experienced in undertaking health searches is invaluable when developing a search.

Once studies are selected, the quality of the research/evidence requires evaluation. Using a quality appraisal tool, such as the Critical Appraisal Skills Programme (CASP) tools, 5 results in a structured approach to assessing the rigour of studies being reviewed. 3 Approaches to data synthesis for quantitative studies may include a meta-analysis (statistical analysis of data from multiple studies of similar designs that have addressed the same question), or findings can be reported descriptively. 6 Methods applicable for synthesising qualitative studies include meta-ethnography (themes and concepts from different studies are explored and brought together using approaches similar to qualitative data analysis methods), narrative summary, thematic analysis and content analysis. 7 Table 1 outlines the stages undertaken for a published review that summarised research about parents’ experiences of living with a child with a long-term condition. 8

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An example of rapid evidence assessment review

In summary, the type of literature review depends on the review purpose. For the novice reviewer undertaking a review can be a daunting and complex process; by following the stages outlined and being systematic a robust review is achievable. The importance of literature reviews should not be underestimated—they help summarise and make sense of an increasingly vast body of research promoting best evidence-based practice.

  • ↵ Centre for Reviews and Dissemination . Guidance for undertaking reviews in health care . 3rd edn . York : CRD, York University , 2009 .
  • ↵ Canadian Best Practices Portal. http://cbpp-pcpe.phac-aspc.gc.ca/interventions/selected-systematic-review-sites / ( accessed 7.8.2015 ).
  • Bridges J , et al
  • ↵ Critical Appraisal Skills Programme (CASP). http://www.casp-uk.net / ( accessed 7.8.2015 ).
  • Dixon-Woods M ,
  • Shaw R , et al
  • Agarwal S ,
  • Jones D , et al
  • Cheater F ,

Twitter Follow Joanna Smith at @josmith175

Competing interests None declared.

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  • Published: 24 April 2024

Breast cancer screening motivation and behaviours of women aged over 75 years: a scoping review

  • Virginia Dickson-Swift 1 ,
  • Joanne Adams 1 ,
  • Evelien Spelten 1 ,
  • Irene Blackberry 2 ,
  • Carlene Wilson 3 , 4 , 5 &
  • Eva Yuen 3 , 6 , 7 , 8  

BMC Women's Health volume  24 , Article number:  256 ( 2024 ) Cite this article

Metrics details

This scoping review aimed to identify and present the evidence describing key motivations for breast cancer screening among women aged ≥ 75 years. Few of the internationally available guidelines recommend continued biennial screening for this age group. Some suggest ongoing screening is unnecessary or should be determined on individual health status and life expectancy. Recent research has shown that despite recommendations regarding screening, older women continue to hold positive attitudes to breast screening and participate when the opportunity is available.

All original research articles that address motivation, intention and/or participation in screening for breast cancer among women aged ≥ 75 years were considered for inclusion. These included articles reporting on women who use public and private breast cancer screening services and those who do not use screening services (i.e., non-screeners).

The Joanna Briggs Institute (JBI) methodology for scoping reviews was used to guide this review. A comprehensive search strategy was developed with the assistance of a specialist librarian to access selected databases including: the Cumulative Index to Nursing and Allied Health Literature (CINAHL), Medline, Web of Science and PsychInfo. The review was restricted to original research studies published since 2009, available in English and focusing on high-income countries (as defined by the World Bank). Title and abstract screening, followed by an assessment of full-text studies against the inclusion criteria was completed by at least two reviewers. Data relating to key motivations, screening intention and behaviour were extracted, and a thematic analysis of study findings undertaken.

A total of fourteen (14) studies were included in the review. Thematic analysis resulted in identification of three themes from included studies highlighting that decisions about screening were influenced by: knowledge of the benefits and harms of screening and their relationship to age; underlying attitudes to the importance of cancer screening in women's lives; and use of decision aids to improve knowledge and guide decision-making.

The results of this review provide a comprehensive overview of current knowledge regarding the motivations and screening behaviour of older women about breast cancer screening which may inform policy development.

Peer Review reports

Introduction

Breast cancer is now the most commonly diagnosed cancer in the world overtaking lung cancer in 2021 [ 1 ]. Across the globe, breast cancer contributed to 25.8% of the total number of new cases of cancer diagnosed in 2020 [ 2 ] and accounts for a high disease burden for women [ 3 ]. Screening for breast cancer is an effective means of detecting early-stage cancer and has been shown to significantly improve survival rates [ 4 ]. A recent systematic review of international screening guidelines found that most countries recommend that women have biennial mammograms between the ages of 40–70 years [ 5 ] with some recommending that there should be no upper age limit [ 6 , 7 , 8 , 9 , 10 , 11 , 12 ] and others suggesting that benefits of continued screening for women over 75 are not clear [ 13 , 14 , 15 ].

Some guidelines suggest that the decision to end screening should be determined based on the individual health status of the woman, their life expectancy and current health issues [ 5 , 16 , 17 ]. This is because the benefits of mammography screening may be limited after 7 years due to existing comorbidities and limited life expectancy [ 18 , 19 , 20 , 21 ], with some jurisdictions recommending breast cancer screening for women ≥ 75 years only when life expectancy is estimated as at least 7–10 years [ 22 ]. Others have argued that decisions about continuing with screening mammography should depend on individual patient risk and health management preferences [ 23 ]. This decision is likely facilitated by a discussion between a health care provider and patient about the harms and benefits of screening outside the recommended ages [ 24 , 25 ]. While mammography may enable early detection of breast cancer, it is clear that false-positive results and overdiagnosis Footnote 1 may occur. Studies have estimated that up to 25% of breast cancer cases in the general population may be over diagnosed [ 26 , 27 , 28 ].

The risk of being diagnosed with breast cancer increases with age and approximately 80% of new cases of breast cancer in high-income countries are in women over the age of 50 [ 29 ]. The average age of first diagnosis of breast cancer in high income countries is comparable to that of Australian women which is now 61 years [ 2 , 4 , 29 ]. Studies show that women aged ≥ 75 years generally have positive attitudes to mammography screening and report high levels of perceived benefits including early detection of breast cancer and a desire to stay healthy as they age [ 21 , 30 , 31 , 32 ]. Some women aged over 74 participate, or plan to participate, in screening despite recommendations from health professionals and government guidelines advising against it [ 33 ]. Results of a recent review found that knowledge of the recommended guidelines and the potential harms of screening are limited and many older women believed that the benefits of continued screening outweighed the risks [ 30 ].

Very few studies have been undertaken to understand the motivations of women to screen or to establish screening participation rates among women aged ≥ 75 and older. This is surprising given that increasing age is recognised as a key risk factor for the development of breast cancer, and that screening is offered in many locations around the world every two years up until 74 years. The importance of this topic is high given the ambiguity around best practice for participation beyond 74 years. A preliminary search of Open Science Framework, PROSPERO, Cochrane Database of Systematic Reviews and JBI Evidence Synthesis in May 2022 did not locate any reviews on this topic.

This scoping review has allowed for the mapping of a broad range of research to explore the breadth and depth of the literature, summarize the evidence and identify knowledge gaps [ 34 , 35 ]. This information has supported the development of a comprehensive overview of current knowledge of motivations of women to screen and screening participation rates among women outside the targeted age of many international screening programs.

Materials and methods

Research question.

The research question for this scoping review was developed by applying the Population—Concept—Context (PCC) framework [ 36 ]. The current review addresses the research question “What research has been undertaken in high-income countries (context) exploring the key motivations to screen for breast cancer and screening participation (concepts) among women ≥ 75 years of age (population)?

Eligibility criteria

Participants.

Women aged ≥ 75 years were the key population. Specifically, motivations to screen and screening intention and behaviour and the variables that discriminate those who screen from those who do not (non-screeners) were utilised as the key predictors and outcomes respectively.

From a conceptual perspective it was considered that motivation led to behaviour, therefore articles that described motivation and corresponding behaviour were considered. These included articles reporting on women who use public (government funded) and private (fee for service) breast cancer screening services and those who do not use screening services (i.e., non-screeners).

The scope included high-income countries using the World Bank definition [ 37 ]. These countries have broadly similar health systems and opportunities for breast cancer screening in both public and private settings.

Types of sources

All studies reporting original research in peer-reviewed journals from January 2009 were eligible for inclusion, regardless of design. This date was selected due to an evaluation undertaken for BreastScreen Australia recommending expansion of the age group to include 70–74-year-old women [ 38 ]. This date was also indicative of international debate regarding breast cancer screening effectiveness at this time [ 39 , 40 ]. Reviews were also included, regardless of type—scoping, systematic, or narrative. Only sources published in English and available through the University’s extensive research holdings were eligible for inclusion. Ineligible materials were conference abstracts, letters to the editor, editorials, opinion pieces, commentaries, newspaper articles, dissertations and theses.

This scoping review was registered with the Open Science Framework database ( https://osf.io/fd3eh ) and followed Joanna Briggs Institute (JBI) methodology for scoping reviews [ 35 , 36 ]. Although ethics approval is not required for scoping reviews the broader study was approved by the University Ethics Committee (approval number HEC 21249).

Search strategy

A pilot search strategy was developed in consultation with an expert health librarian and tested in MEDLINE (OVID) and conducted on 3 June 2022. Articles from this pilot search were compared with seminal articles previously identified by the members of the team and used to refine the search terms. The search terms were then searched as both keywords and subject headings (e.g., MeSH) in the titles and abstracts and Boolean operators employed. A full MEDLINE search was then carried out by the librarian (see Table  1 ). This search strategy was adapted for use in each of the following databases: Cumulative Index to Nursing and Allied Health Literature (CINAHL), Medical Literature Analysis and Retrieval System Online (MEDLINE), Web of Science and PsychInfo databases. The references of included studies have been hand-searched to identify any additional evidence sources.

Study/source of evidence selection

Following the search, all identified citations were collated and uploaded into EndNote v.X20 (Clarivate Analytics, PA, USA) and duplicates removed. The resulting articles were then imported into Covidence – Cochrane’s systematic review management software [ 41 ]. Duplicates were removed once importation was complete, and title and abstract screening was undertaken against the eligibility criteria. A sample of 25 articles were assessed by all reviewers to ensure reliability in the application of the inclusion and exclusion criteria. Team discussion was used to ensure consistent application. The Covidence software supports blind reviewing with two reviewers required at each screening phase. Potentially relevant sources were retrieved in full text and were assessed against the inclusion criteria by two independent reviewers. Conflicts were flagged within the software which allows the team to discuss those that have disagreements until a consensus was reached. Reasons for exclusion of studies at full text were recorded and reported in the scoping review. The Preferred Reporting Items of Systematic Reviews extension for scoping reviews (PRISMA-ScR) checklist was used to guide the reporting of the review [ 42 ] and all stages were documented using the PRISMA-ScR flow chart [ 42 ].

Data extraction

A data extraction form was created in Covidence and used to extract study characteristics and to confirm the study’s relevance. This included specific details such as article author/s, title, year of publication, country, aim, population, setting, data collection methods and key findings relevant to the review question. The draft extraction form was modified as needed during the data extraction process.

Data analysis and presentation

Extracted data were summarised in tabular format (see Table  2 ). Consistent with the guidelines for the effective reporting of scoping reviews [ 43 ] and the JBI framework [ 35 ] the final stage of the review included thematic analysis of the key findings of the included studies. Study findings were imported into QSR NVivo with coding of each line of text. Descriptive codes reflected key aspects of the included studies related to the motivations and behaviours of women > 75 years about breast cancer screening.

In line with the reporting requirements for scoping reviews the search results for this review are presented in Fig.  1 [ 44 ].

figure 1

PRISMA Flowchart. From: Page MJ, McKenzie JE, Bossuyt PM, Boutron I, Hoffmann TC, Mulrow CD, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ 2021;372:n71. https://doi.org/10.1136/bmj.n71

A total of fourteen [ 14 ] studies were included in the review with studies from the following countries, US n  = 12 [ 33 , 45 , 46 , 47 , 48 , 49 , 50 , 51 , 52 , 53 , 54 , 55 ], UK n  = 1 [ 23 ] and France n  = 1 [ 56 ]. Sample sizes varied, with most containing fewer than 50 women ( n  = 8) [ 33 , 45 , 46 , 48 , 51 , 52 , 55 ]. Two had larger samples including a French study with 136 women (a sub-set of a larger sample) [ 56 ], and one mixed method study in the UK with a sample of 26 women undertaking interviews and 479 women completing surveys [ 23 ]. One study did not report exact numbers [ 50 ]. Three studies [ 47 , 53 , 54 ] were undertaken by a group of researchers based in the US utilising the same sample of women, however each of the papers focused on different primary outcomes. The samples in the included studies were recruited from a range of locations including primary medical care clinics, specialist medical clinics, University affiliated medical clinics, community-based health centres and community outreach clinics [ 47 , 53 , 54 ].

Data collection methods varied and included: quantitative ( n  = 8), qualitative ( n  = 5) and mixed methods ( n  = 1). A range of data collection tools and research designs were utilised; pre/post, pilot and cross-sectional surveys, interviews, and secondary analysis of existing data sets. Seven studies focused on the use of a Decision Aids (DAs), either in original or modified form, developed by Schonberg et al. [ 55 ] as a tool to increase knowledge about the harms and benefits of screening for older women [ 45 , 47 , 48 , 49 , 52 , 54 , 55 ]. Three studies focused on intention to screen [ 33 , 53 , 56 ], two on knowledge of, and attitudes to, screening [ 23 , 46 ], one on information needs relating to risks and benefits of screening discontinuation [ 51 ], and one on perceptions about discontinuation of screening and impact of social interactions on screening [ 50 ].

The three themes developed from the analysis of the included studies highlighted that decisions about screening were primarily influenced by: (1) knowledge of the benefits and harms of screening and their relationship to age; (2) underlying attitudes to the importance of cancer screening in women's lives; and (3) exposure to decision aids designed to facilitate informed decision-making. Each of these themes will be presented below drawing on the key findings of the appropriate studies. The full dataset of extracted data can be found in Table  2 .

Knowledge of the benefits and harms of screening ≥ 75 years

The decision to participate in routine mammography is influenced by individual differences in cognition and affect, interpersonal relationships, provider characteristics, and healthcare system variables. Women typically perceive mammograms as a positive, beneficial and routine component of care [ 46 ] and an important aspect of taking care of themselves [ 23 , 46 , 49 ]. One qualitative study undertaken in the US showed that few women had discussed mammography cessation or the potential harms of screening with their health care providers and some women reported they would insist on receiving mammography even without a provider recommendation to continue screening [ 46 ].

Studies suggested that ageing itself, and even poor health, were not seen as reasonable reasons for screening cessation. For many women, guidance from a health care provider was deemed the most important influence on decision-making [ 46 ]. Preferences for communication about risk and benefits were varied with one study reporting women would like to learn more about harms and risks and recommended that this information be communicated via physicians or other healthcare providers, included in brochures/pamphlets, and presented outside of clinical settings (e.g., in community-based seniors groups) [ 51 ]. Others reported that women were sometimes sceptical of expert and government recommendations [ 33 ] although some were happy to participate in discussions with health educators or care providers about breast cancer screening harms and benefits and potential cessation [ 52 ].

Underlying attitudes to the importance of cancer screening at and beyond 75 years

Included studies varied in describing the importance of screening, with some attitudes based on past attendance and some based on future intentions to screen. Three studies reported findings indicating that some women intended to continue screening after 75 years of age [ 23 , 45 , 46 ], with one study in the UK reporting that women supported an extension of the automatic recall indefinitely, regardless of age or health status. In this study, failure to invite older women to screen was interpreted as age discrimination [ 23 ]. The desire to continue screening beyond 75 was also highlighted in a study from France that found that 60% of the women ( n  = 136 aged ≥ 75) intended to pursue screening in the future, and 27 women aged ≥ 75, who had never undergone mammography previously (36%), intended to do so in the future [ 56 ]. In this same study, intentions to screen varied significantly [ 56 ]. There were no sociodemographic differences observed between screened and unscreened women with regard to level of education, income, health risk behaviour (smoking, alcohol consumption), knowledge about the importance and the process of screening, or psychological features (fear of the test, fear of the results, fear of the disease, trust in screening impact) [ 56 ]. Further analysis showed that three items were statistically correlated with a higher rate of attendance at screening: (1) screening was initiated by a physician; (2) the women had a consultation with a gynaecologist during the past 12 months; and (3) the women had already undergone at least five screening mammograms. Analysis highlighted that although average income, level of education, psychological features or other types of health risk behaviours did not impact screening intention, having a mammogram previously impacted likelihood of ongoing screening. There was no information provided that explained why women who had not previously undergone screening might do so in the future.

A mixed methods study in the UK reported similar findings [ 23 ]. Utilising interviews ( n  = 26) and questionnaires ( n  = 479) with women ≥ 70 years (median age 75 years) the overwhelming result (90.1%) was that breast screening should be offered to all women indefinitely regardless of age, health status or fitness [ 23 ], and that many older women were keen to continue screening. Both the interview and survey data confirmed women were uncertain about eligibility for breast screening. The survey data showed that just over half the women (52.9%) were unaware that they could request mammography or knew how to access it. Key reasons for screening discontinuation were not being invited for screening (52.1%) and not knowing about self-referral (35.1%).

Women reported that not being invited to continue screening sent messages that screening was no longer important or required for this age group [ 23 ]. Almost two thirds of the women completing the survey (61.6%) said they would forget to attend screening without an invitation. Other reasons for screening discontinuation included transport difficulties (25%) and not wishing to burden family members (24.7%). By contrast, other studies have reported that women do not endorse discontinuation of screening mammography due to advancing age or poor health, but some may be receptive to reducing screening frequency on recommendation from their health care provider [ 46 , 51 ].

Use of Decision Aids (DAs) to improve knowledge and guide screening decision-making

Many women reported poor knowledge about the harms and benefits of screening with studies identifying an important role for DAs. These aids have been shown to be effective in improving knowledge of the harms and benefits of screening [ 45 , 54 , 55 ] including for women with low educational attainment; as compared to women with high educational attainment [ 47 ]. DAs can increase knowledge about screening [ 47 , 49 ] and may decrease the intention to continue screening after the recommended age [ 45 , 52 , 54 ]. They can be used by primary care providers to support a conversation about breast screening intention and reasons for discontinuing screening. In one pilot study undertaken in the US using a DA, 5 of the 8 women (62.5%) indicated they intended to continue to receive mammography; however, 3 participants planned to get them less often [ 45 ]. When asked whether they thought their physician would want them to get a mammogram, 80% said “yes” on pre-test; this figure decreased to 62.5% after exposure to the DA. This pilot study suggests that the use of a decision-aid may result in fewer women ≥ 75 years old continuing to screen for breast cancer [ 45 ].

Similar findings were evident in two studies drawing on the same data undertaken in the US [ 48 , 53 ]. Using a larger sample ( n  = 283), women’s intentions to screen prior to a visit with their primary care provider and then again after exposure to the DA were compared. Results showed that 21.7% of women reduced their intention to be screened, 7.9% increased their intentions to be screened, and 70.4% did not change. Compared to those who had no change or increased their screening intentions, women who had a decrease in screening intention were significantly less likely to receive screening after 18 months. Generally, studies have shown that women aged 75 and older find DAs acceptable and helpful [ 47 , 48 , 49 , 55 ] and using them had the potential to impact on a women’s intention to screen [ 55 ].

Cadet and colleagues [ 49 ] explored the impact of educational attainment on the use of DAs. Results highlight that education moderates the utility of these aids; women with lower educational attainment were less likely to understand all the DA’s content (46.3% vs 67.5%; P < 0.001); had less knowledge of the benefits and harms of mammography (adjusted mean ± standard error knowledge score, 7.1 ± 0.3 vs 8.1 ± 0.3; p < 0.001); and were less likely to have their screening intentions impacted (adjusted percentage, 11.4% vs 19.4%; p  = 0.01).

This scoping review summarises current knowledge regarding motivations and screening behaviours of women over 75 years. The findings suggest that awareness of the importance of breast cancer screening among women aged ≥ 75 years is high [ 23 , 46 , 49 ] and that many women wish to continue screening regardless of perceived health status or age. This highlights the importance of focusing on motivation and screening behaviours and the multiple factors that influence ongoing participation in breast screening programs.

The generally high regard attributed to screening among women aged ≥ 75 years presents a complex challenge for health professionals who are focused on potential harm (from available national and international guidelines) in ongoing screening for women beyond age 75 [ 18 , 20 , 57 ]. Included studies highlight that many women relied on the advice of health care providers regarding the benefits and harms when making the decision to continue breast screening [ 46 , 51 , 52 ], however there were some that did not [ 33 ]. Having a previous pattern of screening was noted as being more significant to ongoing intention than any other identified socio-demographic feature [ 56 ]. This is perhaps because women will not readily forgo health care practices that they have always considered important and that retain ongoing importance for the broader population.

For those women who had discontinued screening after the age of 74 it was apparent that the rationale for doing so was not often based on choice or receipt of information, but rather on factors that impact decision-making in relation to screening. These included no longer receiving an invitation to attend, transport difficulties and not wanting to be a burden on relatives or friends [ 23 , 46 , 51 ]. Ongoing receipt of invitations to screen was an important aspect of maintaining a capacity to choose [ 23 ]. This was particularly important for those women who had been regular screeners.

Women over 75 require more information to make decisions regarding screening [ 23 , 52 , 54 , 55 ], however health care providers must also be aware that the element of choice is important for older women. Having a capacity to choose avoids any notion of discrimination based on age, health status, gender or sociodemographic difference and acknowledges the importance of women retaining control over their health [ 23 ]. It was apparent that some women would choose to continue screening at a reduced frequency if this option was available and that women should have access to information facilitating self-referral [ 23 , 45 , 46 , 51 , 56 ].

Decision-making regarding ongoing breast cancer screening has been facilitated via the use of Decision Aids (DAs) within clinical settings [ 54 , 55 ]. While some studies suggest that women will make a decision regardless of health status, the use of DAs has impacted women’s decision to screen. While this may have limited benefit for those of lower educational attainment [ 48 ] they have been effective in improving knowledge relating to harms and benefits of screening particularly where they have been used to support a conversation with women about the value of screening [ 54 , 55 , 56 ].

Women have identified challenges in engaging in conversations with health care providers regarding ongoing screening, because providers frequently draw on projections of life expectancy and over-diagnosis [ 17 , 51 ]. As a result, these conversations about screening after age 75 years often do not occur [ 46 ]. It is likely that health providers may need more support and guidance in leading these conversations. This may be through the use of DAs or standardised checklists. It may be possible to incorporate these within existing health preventive measures for this age group. The potential for advice regarding ongoing breast cancer screening to be available outside of clinical settings may provide important pathways for conversations with women regarding health choices. Provision of information and advice in settings such as community based seniors groups [ 51 ] offers a potential platform to broaden conversations and align sources of information, not only with health professionals but amongst women themselves. This may help to address any misconception regarding eligibility and access to services [ 23 ]. It may also be aligned with other health promotion and lifestyle messages provided to this age group.

Limitations of the review

The searches that formed the basis of this review were carried in June 2022. Although the search was comprehensive, we have only captured those studies that were published in the included databases from 2009. There may have been other studies published outside of these periods. We also limited the search to studies published in English with full-text availability.

The emphasis of a scoping review is on comprehensive coverage and synthesis of the key findings, rather than on a particular standard of evidence and, consequently a quality assessment of the included studies was not undertaken. This has resulted in the inclusion of a wide range of study designs and data collection methods. It is important to note that three studies included in the review drew on the same sample of women (283 over > 75)[ 49 , 53 , 54 ]. The results of this review provide valuable insights into motivations and behaviours for breast cancer screening for older women, however they should be interpreted with caution given the specific methodological and geographical limitations.

Conclusion and recommendations

This scoping review highlighted a range of key motivations and behaviours in relation to breast cancer screening for women ≥ 75 years of age. The results provide some insight into how decisions about screening continuation after 74 are made and how informed decision-making can be supported. Specifically, this review supports the following suggestions for further research and policy direction:

Further research regarding breast cancer screening motivations and behaviours for women over 75 would provide valuable insight for health providers delivering services to women in this age group.

Health providers may benefit from the broader use of decision aids or structured checklists to guide conversations with women over 75 regarding ongoing health promotion/preventive measures.

Providing health-based information in non-clinical settings frequented by women in this age group may provide a broader reach of information and facilitate choices. This may help to reduce any perception of discrimination based on age, health status or socio-demographic factors.

Availability of data and materials

All data generated or analysed during this study is included in this published article (see Table  2 above).

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Acknowledgements

We would like to acknowledge Ange Hayden-Johns (expert librarian) who assisted with the development of the search criteria and undertook the relevant searches and Tejashree Kangutkar who assisted with some of the Covidence work.

This work was supported by funding from the Australian Government Department of Health and Aged Care (ID: Health/20–21/E21-10463).

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VDS conceived and designed the scoping review. VDS & JA developed the search strategy with librarian support, and all authors (VDS, JA, ES, IB, CW, EY) participated in the screening and data extraction stages and assisted with writing the review. All authors provided editorial support and read and approved the final manuscript prior to submission.

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Dickson-Swift, V., Adams, J., Spelten, E. et al. Breast cancer screening motivation and behaviours of women aged over 75 years: a scoping review. BMC Women's Health 24 , 256 (2024). https://doi.org/10.1186/s12905-024-03094-z

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Transcending technology boundaries and maintaining sense of community in virtual mental health peer support: a qualitative study with service providers and users

  • Elmira Mirbahaeddin 1 &
  • Samia Chreim 1  

BMC Health Services Research volume  24 , Article number:  510 ( 2024 ) Cite this article

Metrics details

This qualitative study explores the experiences of peer support workers (PSWs) and service users (or peers) during transition from in-person to virtual mental health services. During and following the COVID-19 pandemic, the need for accessible and community-based mental health support has become increasingly important. This research aims to understand how technological factors act as bridges and boundaries to mental health peer support services. In addition, the study explores whether and how a sense of community can be built or maintained among PSWs and peers in a virtual space when connections are mediated by technology. This research fills a gap in the literature by incorporating the perspectives of service users and underscores the potential of virtual peer support beyond pandemic conditions.

Data collection was conducted from a community organization that offers mental health peer support services. Semi-structured interviews were conducted with 13 employees and 27 service users. Thematic analysis was employed to identify key themes and synthesize a comprehensive understanding.

The findings highlight the mental health peer support needs that were met through virtual services, the manifestation of technology-based boundaries and the steps taken to remove some of these boundaries, and the strategies employed by the organization and its members to establish and maintain a sense of community in a virtual environment marked by physical distancing and technology-mediated interrelations. The findings also reveal the importance of providing hybrid services consisting of a mixture of in person and virtual mental health support to reach a broad spectrum of service users.

Conclusions

The study contributes to the ongoing efforts to enhance community mental health services and support in the virtual realm. It shows the importance of virtual peer support in situations where in-person support is not accessible. A hybrid model combining virtual and in-person mental health support services is recommended for better accessibility to mental health support services. Moreover, the importance of organizational support and of equitable resource allocation to overcome service boundaries are discussed.

Peer Review reports

There is growing awareness around the world of the need to improve mental health services, yet the response to the need has been constrained [ 1 ]. The World Health Organization (WHO) has pointed to the urgent need to invest in community-based mental health services that prioritize a person-centred, recovery approach. Among these services, the WHO highlights the importance of peer support [ 1 ]. Formal mental health peer support refers to emotional and social support (Mental Health Commission of Canada, https://mentalhealthcommission.ca/what-we-do/access/peer-support/ ) provided by an individual referred to as a peer support worker (PSW). A mental health PSW is a person who has lived experience of mental health issues, has paid employment in a mental health support or services organization– often after receiving training– and offers intentional support to clients with mental health challenges through empathetic understanding and encouragement of self-determined recovery [ 2 , 3 ].

Peer support is based on the belief that individuals who have navigated their own recovery experiences hold unique insights and lived practical knowledge that can be helpful in supporting others in their recovery (Mead, Hilton & Curtis, 2001). The notion of recovery in mental health refers to a multidimensional process that involves individuals actively engaging in their own well-being, making self-determined choices, fostering social connections, and pursuing a meaningful life despite the presence of mental health challenges (Mead, Hilton & Curtis, 2001). Peer support represents a political alternative to professionally led services and decision-making processes; it is an important approach for promoting the agency of individuals with mental health issues and reversing the power imbalances prevalent in the mental health system. Peer support can promote empowerment and self-efficacy, help enhance coping skills and strategies, and contribute to overall quality of life and emotional well-being [ 4 , 5 , 6 ]. It has been particularly helpful in situations where traditional professional mental health services might not fully address the needs of individuals or are not easily accessible [ 3 , 7 ].

The importance of peer support became particularly salient during the COVID-19 pandemic. The pandemic adversely affected access to in-person mental health services, especially in jurisdictions where lockdowns were enacted. Peer support services in an online format created an opportunity to maintain availability and accessibility to basic yet important community-based mental health support [ 8 ]. A number of jurisdictions increased their peer support capacities by offering PSW training on remote services during the COVID-19 crisis (e.g., the Digital Peer Support Certification for peer specialists in the US that provided Medicaid-reimbursable virtual health services) [ 9 ]. Virtual peer support services have been beneficial in various ways including overcoming geographical barriers, reducing regional inequalities in access to providers, and offering convenience for a wide range of vulnerable populations in communities [ 10 – 11 ]. Hence virtual peer support has created bridges allowing people in need of mental health support to access it. These bridges can be advantageous not only in crisis situations such as the pandemic but also in non-crisis contexts by offering expanded accessibility.

There has been growing use of technology for a variety of mental health and support services with an aim to improve accessibility [ 10 , 11 , 12 ]. However, the move to provide mental health services and support remotely, despite its many benefits, also comes with challenges. These challenges include, among others, the need for providers and service users to adapt to the utilization of diverse technologies including synchronous (e.g. video calls) and asynchronous (e.g. apps) modalities [ 11 ]. We view the technological challenges as setting boundaries to providing, accessing and utilizing virtual services.

Existing literature does not provide adequate insight into how individuals adapt when a sudden and major change occurs from in-person to remote mental health and support services. Makarius & Larson (2017) state that the role of individuals in virtual work has been overlooked by considering them as “passive actors” [ 13 , p.166] while portraying organizations as accountable for effective virtual work. They indicate that extant research on virtual work has tended to focus on virtual teams. Therefore, there is a need for a greater focus on individual experiences [ 14 – 15 ]. This applies in a general sense, but also, specifically to peer support. With the advent of COVID-19, PSWs became one of the forefront providers of mental health support [ 9 ]. Service users also had to adjust to virtual services. Yet limited knowledge exists about the individual experiences in the process of adapting and acclimating to using online mediums in virtual services in the context of peer support [ 16 ]. As virtual mental health services and supports are expected to continue to be used in the future, the experiences of individuals providing and receiving virtual peer support have become an important research topic.

Another issue of importance that needs to be considered when peer support is delivered virtually is whether technology-mediated connections allow peer support groups and individuals to maintain a sense of community. This sense of community is grounded in people’s relationship with a group that offers them membership, fulfillment of needs, and shared emotional connection [ 17 ], yet it is unclear whether the sense of community that is characteristic of in-person peer support is severed when services move online.

Earlier conceptualizations of communities emphasized the spatial dimension, defining communities as groups of people associated with a setting such as a neighbourhood or village [ 18 ]. McMillan and Chavis (1986) point to earlier work [ 19 ] that distinguished between the geographical notion of community (such as a neighbourhood or town) and the relational notion concerned with human relationships regardless of location [ 20 ]. McMillan and Chavis [ 20 , p. 9] propose a definition of sense of community that applies to both of these conceptualizations, and is as follows: “Sense of community is a feeling that members have of belonging, a feeling that members matter to one another and to the group, and a shared faith that members’ needs will be met through their commitment to be together.” These authors point to four elements in their definition: (a) membership (a feeling of belonging or personal relatedness), (b) influence (a sense of mattering to the group), (c) integration and fulfillment of needs (a feeling that needs will be met through membership in the group), and (d) shared emotional connection (a belief that members have shared history and similar experiences) [ 20 , p. 9].

In peer support communities, the principles of valuing individuals’ experiential knowledge of mental illnesses, determination for recovery, equality and reciprocity, and mutual agreement on what would be helpful for different individuals play a vital role [ 2 , 3 , 4 , 5 , 6 , 7 , 8 , 9 , 10 , 11 , 12 , 13 , 14 , 15 , 16 , 17 , 18 , 19 , 20 , 21 ]. People benefit in different ways by having a sense of community. They experience less isolation and social exclusion, have a greater sense of well-being, can call on support when they need it and learn from the experiences of other members [ 22 – 23 ]. Cronenwett & Norris (2009) examined the role of social collectives in providing peer support services to individuals with co-occurring disorders and the benefits of social support and shared experiences in promoting recovery [ 24 ]. However, it is not clear yet how peer support sense of community is created or maintained in situations where peer support moves to a virtual space and relationships are mediated by technological tools. To our knowledge, this topic has not been addressed despite its importance.

Given the importance of peer support and the recent surge in virtual peer support service provision, our objective is to understand how technological factors can act as bridges and boundaries to services, and whether and how a peer sense of community can be built or maintained in a virtual space that relies extensively on the use of technological tools. We aim to understand these issues from the perspective of individuals affected directly by the changes from in-person to virtual services. Therefore, we focus on PSWs who provide support services, and on the service users or clients– also known as peers. Inclusion of peer voices is particularly important, given that this is a gap in the literature since much research on peer support is based on the views of managers and PSWs, and not on the views of the peers themselves [ 25 ]. This limitation in the literature applies to peer support specifically, but also more broadly. For example, a systematic review investigating the implementation and adoption of telemental health found that research studies involved fewer service users compared to the number of providers (only 9 out of 45 included papers involved service users), indicating that the point of view of service users has not been adequately researched and little is reported about their experiences [ 26 ].

Hence, we ask the following research questions: What mental health peer support needs were met with virtual services? How were technology-based boundaries manifested and what bridges were built to open boundaries? How, if at all, was a sense of community established or maintained in a virtual space? We researched these topics in the case of a peer support organization that transitioned from in-person to virtual services during the COVID-19 pandemic. While in the case we studied the move to a virtual space was a response to exacerbated mental health challenges during the pandemic, it also opened up opportunities to understand if and how peer support could be enacted virtually beyond pandemic conditions . The surging interest in providing mental health services and support virtually thus makes our study a timely endeavor, and our findings a valuable addition to the literature.

Study design and context

We adopted an exploratory case study approach [ 27 ] as it allows us to understand complex social phenomena and generate new insights [ 28 ]. We aimed to achieve a deep understanding of how members of a peer support organization viewed or experienced mental health needs within the broader social context of the pandemic, how they interacted with technological aspects of virtual services, and the strategies they used to create a sense of community in a virtual space.

Our primary data consisted of semi-structured interviews with employees (PSWs and/or managers) and service users (or peers) of a peer support organization based in a major city in Ontario, Canada. This organization had more than twenty compensated PSWs, some of whom held managerial positions in the organization. It served the needs of a large number of peers who sought its various services. Before the COVID-19 pandemic, this organization primarily offered in-person services that included, among others, various peer groups as well as recreational and social programs which were also intended to provide support. We initiated the data collection in the early stages of the pandemic when lockdown regulations were implemented in Ontario. The reason for selecting this particular case was the organization’s rapid transition to virtual platforms in response to increased demand for peer support during lockdowns and isolation.

Data collection

We collaborated with the organization in informing potential participants about the study. An email was sent by the organization to all its employees and service users informing them about the study, and inviting individuals interested in participating to contact the researchers. Thirteen PSWs and twenty-seven service users contacted the researchers. We interviewed all individuals who contacted us, thus our study included forty participants. Participants’ age ranged between being in their 20s and 60s, and the majority identified as female.

We conducted semi-structured interviews with participants. Different interview protocols were developed for each group of participants, and they were developed for this specific study. Based on the research questions and objectives, key themes were identified to guide the formulation of the interview questions. Moreover, the interview protocol was informed by existing literature on mental health peer support, the pandemic circumstances and concepts relating to boundary theory and sense of community. We adjusted the interview questions to account for feedback from the organization, whose approval we sought on the final interview protocols. A small group representing managers, PSWs and peers participated in providing feedback and validating the interview protocols. Overall, the questions were crafted to be clear and open-ended to encourage detailed responses and in-depth exploration of the subject matter. The interview protocols included questions on individuals’ mental health experiences during the pandemic, their experiences associated with opportunities and challenges of virtual services technology, the strategies that they and the organization used to capitalize on opportunities, remove difficulties, and build or maintain a sense of community. Open-ended questions enabled us to probe for additional details and allowed the participants to share beyond our questions, which provided us with rich and nuanced data [ 29 ]. The interviews were conducted via Zoom or phone, based on the participant’s preference. The interviews were conducted during the pandemic from February to November 2021. They were recorded and transcribed verbatim.

Data analysis

We conducted thematic analysis and used the N-Vivo software for data coding and retrieval. Specifically, we followed the steps outlined by Braun and Clarke (2006) [ 30 ]. Familiarization with the data started with both authors conducting a number of interviews conjointly, taking notes during this process and discussing the preliminary data. Familiarization was enhanced by the first author’s transcription of the interviews. We then generated initial codes by immersing ourselves in the data. The long list of initial codes– or descriptive codes [ 28 ]– was closely related to participants’ words. We then identified emergent themes by grouping similar codes together and reviewing that the coded extracts fit the themes. The process involved constant comparison and was iterative in that we reviewed the codes and themes and changed the theme names when we identified emergent ideas based on new data. Analysis was mostly inductive, but we had also been sensitized by extant literature. In the later stage of the analysis, we grouped the themes into more abstract categories, continuously reviewing and refining the categories. Our final descriptive codes and theme list is presented in Table  1 .

The first author performed the primary analysis and the second author reviewed the analysis on the basis of the data. When the authors’ interpretations differed, they returned to the data to find answers. This process offered confidence that the analysis was well anchored in the data from participants. We conducted member checking—explained in the next section— by seeking feedback from the participants on our analysis.

Establishing trustworthiness

We took several steps to establish the trustworthiness of the study [ 28 , 31 ]. Two researchers worked together on data analysis, returning to the data when disagreements emerged. This offered triangulation through the involvement of two researchers. We also report extensive quotes from our participants as evidence of our analysis. In addition, we conducted member checking to determine whether our findings captured well the experiences of participants and thus ensured the credibility of the results. This entailed sharing a draft of the manuscript with the participants and asking them to provide their feedback on the researchers’ interpretation and whether those aligned with their experiences. We received feedback from two PSWs and five peers, all of whom were in agreement with the results reported. One participant commented, “ I feel that the paper captured… challenges and victories peer supporters experienced during COVID ” and another participant stated, “ It is a good in-depth work/story showing the mental health challenges and how those were addressed during the pandemic, how people evolved from their experience and stood for each other when it mattered the most. ”

Research ethics

The study was approved by the Research Ethics Board (REB) of the University of Ottawa (Reference number S-11-20-6226). All study participants were fully informed about the project through both written and oral communication, and willingly gave their consent. The consent form included information about mental health resources available to them if needed, and participants were informed about their right to withdraw from the study. All procedures followed the appropriate guidelines and regulations.

We begin with the results showing the need for virtual mental health support during the pandemic and follow with the technology-based boundaries and bridges identified in virtual mental health support. In the last section of the results, we focus on the strategies that were used by the collective to maintain a sense of community despite the physical distances. It is important to note that we give attention to pandemic-related dynamics where pertinent, but also go beyond the pandemic context to address more general issues related to virtual peer support that were central in our participants’ accounts.

Need for virtual mental health support services

Boundaries related to accessing in-person services.

The pandemic amplified social issues that resulted in a surge in mental health challenges. Peers shared concerns regarding social vulnerabilities that became exacerbated during the pandemic. They told us about their challenges which included homelessness, domestic abuse, and struggles with addiction that were exacerbated during lockdowns. One peer referred to the “ downward spiral [of mental health] once the COVID-19 pandemic hit”. A peer pointed out that “literally everything shut down in the city…the needs of the community are just desperate ”, and a PSW stated that “with the pandemic, there was a lot of isolation, and it was really hard…also just the transition back as things started opening up. It’s really anxiety provoking for a lot of people. ”

There was also difficulty finding mental health services as there were lengthy wait times to see a mental health professional. A peer stated: “I think the most difficult thing was probably finding people to connect with…. There was a three-month waiting list to be able to even speak to anybody.” It is important to note that accessing mental health services in person was difficult for many people even before and regardless of the pandemic. The following quote by a peer illustrates one of many situations under which accessing in-person peer support can be difficult: “When you have a baby, it’s hard to be somewhere on time and remember to bring everything that you need and deal with the cranky baby… When your expectation is that you’re going to participate in these types of groups in-person, it can be very jarring ”.

Virtual peer support as a bridge

Virtual services can be a bridge connecting individuals to mental health peer support, especially when these individuals experience challenges with attending in-person peer activities. The peer who reflected above on the difficulties associated with accessing in-person peer support pointed out that “ when you can proceed in groups virtually, you can mute yourself, you can step away, your baby’s crib is right there…. So it was a really wonderful option.” A peer reflecting on the high cost of seeking “formal therapy” and the inconvenience of doing so, pointed out that virtual peer support was “a light in the tunnel” for them: “it was free, it was accessible, it was easier to find a peer support group during times that I could access it. During the pandemic, I accessed more groups than I did [in person].”

We also heard from peers whose anxieties had been exacerbated during the pandemic. A peer shared that seeking in-person mental health support was a major challenge. This person added that “ it was nice to be able to access things from Zoom”. Considering the risk of contracting the coronavirus, peers felt that not having to leave the house gave them a “sense of accomplishment” because accessing services remotely helped them remain engaged. A peer noted that virtual peer support had been “ the winter month survival ” for many individuals.

Peers also told us that virtual support was helpful for them in general, and not only because of the pandemic. Social anxieties, unrelated to the pandemic, were often mentioned by participants. A peer stated: I’m very timid to talk in a support group, and with Zoom, I feel I can raise my hand with the computer and I get to speak. Whereas in a peer support group in person, I don’t always get to do that. And… you get to see everybody’s facial reactions when you’re in the gallery view [on Zoom], whereas you can’t do that when you’re in the group because I’m very shy and very anxious.”

Anxieties were also related to driving. A peer stated, “I feel grateful I don’t have to drive far or pay for parking. Without the anxiety of driving and being on time too is very relaxing… (Virtual peer support) is a blessing.” For some individuals for whom transportation to in-person meetings could be difficult due to time or financial constraints, virtual services opened the possibility of receiving peer support.

Peers also told us how the virtual services facilitated receiving support in cases where struggles with depression kept them from seeking in-person services: “ If you’re so depressed, it’s hard to get out of bed… That’s another thing about Zoom, you don’t have to worry so much about your appearance. If you haven’t washed your hair that day, it’s fine… It makes it so much easier to attend .”. Virtual services were also very helpful for peers who felt they needed to seek support frequently: “ I’ve struggled with feeling alone and… feeling overwhelmed… If I had to go to a walk-in, I wouldn’t have done it. I wouldn’t have had access and that would have been bad for me .” Moreover, peers who felt self-conscious about their appearance, had experienced weight shaming, or physical differences found it more comfortable to attend virtual meetings because they “take away the self-consciousness” as a participant stated. By allowing participants to control what they reveal (e.g. by turning the camera on or off), virtual meetings may offer a certain sense of safety that in-person meetings may not provide.

Importantly, we were told that new members had joined virtual meetings who had not previously participated in in-person peer services. A manager pointed out that “a lot of new people who were not previous members have joined the community to get support or to get social interaction” and a PSW stated: “ we are supporting more people now. Our meetings are much larger. I’ve had people contact me from other provinces asking ‘Am I allowed to join?’ We’ve decided that as long as we have the capacity, anybody who wants can come .”

In sum, virtual services offered benefits for individuals who struggled with various issues including anxieties and depression, or whose life circumstances made it difficult for them to commute to in-person meetings. Although the pandemic (and the lockdowns associated with it) exacerbated some of the challenges that people had faced, the quotes above indicate that some challenges were not specifically pandemic-related, but rather pertained to more general mental states and life circumstances. The fact that virtual meetings drew in attendance from individuals who had never been to in-person meetings is a further indication that virtual platforms increase accessibility for peers.

Boundaries and bridges relating to telecommunication technology for virtual mental health support

Accessing virtual services offered peers opportunities to receive support, but accessing these services had its own challenges. A major challenge was technology, which manifested in terms of access to and compatibility of devices, access to internet connection, and basic technological skills. We report on these challenges and on how they were mitigated.

Virtual service technology boundaries

Technology-based challenges were associated with access to and use of equipment, access to internet connections, and limited technology-based skills. Some individuals from both groups (peers and PSWs) found it difficult to transition to virtual services due to the unprecedented complexities introduced by the new service environment: “ the hardest thing for people is the technology part of it .” The experience of change to virtual services was described as “ anxiety-provoking ” for people who were not familiar with the use of technology such as computers and smartphones in daily life.

Accessing virtual services required the use of the appropriate equipment such as smart phones, and for some peers, access to these devices was a challenge. A peer described: “ The devices that I had access to were lower-end devices… My cell phone was blocking out and freezing ”. Another peer stated: “ I would drop in occasionally using my phone. But I didn’t have a computer, and currently, I’m receiving disability benefits… As far as having money to burn, that’s not an option for me, it’s a very tight situation ”. In addition, lack of access to and reliable internet connection was another boundary. A participant described the lockdown situation: “ It was a big shock. It’s a big change. It’s forcing a lot of people who didn’t have the Internet to get Internet. So that caused a lot of stress and strain on a lot of people ”. Peers who shared an internet connection with multiple residents had to coordinate schedules since simultaneous Zoom calls could interrupt connections.

For some individuals, a lack of technology-based skills was a boundary. Some peers had difficulty navigating the nuances of the various platforms and their compatibility with the devices they were using: “ You had to figure out what platform was used and whether or not your technology was going to be compatible with it. ” Other peers experienced difficulties early on with logging in and accessing meetings: “[It was a] struggle with the process of getting signed up, to get the notifications, to get the information ”. Others reported difficulty navigating the programs’ options during the meetings (e.g., using the raise hand option). The challenges did not only pertain to peers. PSWs also faced difficulties with technology: “I did not have the technology needed to be able to do my job from home. I had a smartphone, but it’s still very challenging to host a Zoom group when I can only see 4 little faces on a screen.”

Virtual service bridges: supports provided by the organization and PSWs

When the lockdowns were mandated, concern about peers’ mental health needs drove the organization to create a variety of platforms through which peer support services could be accessed. Within a few weeks, the organization created remote services to maintain continuity in support for peers. A PSW pointed out “They were relying on us for their well-being.” This created a sense of urgency to adapt quickly in order to meet the needs of the community.

Efforts were quickly deployed to connect with peers by phone and to create accessibility through online options. As a peer stated, they were “ trying to make things just as accessible as they could be ”. To this end, the organization engaged in advocacy efforts with external partners to provide devices, data, and internet connection to those without technology. A manager stated: “Many people with mental health and addictions don’t even have access… We have been providing people with tech and tablets and smartphones and connectivity, and we’re a peer agency, we don’t have this kind of stuff!… I kept raising it at our (regional health authority) table with a lot of people who are very high up. And they said, ‘Let’s do it’! So we applied and put together a proposal… We now have contracts with [internet] providers, so [one company] provides the smartphones with sim cards and [another company] provides the tablets.”

PSWs walked peers step by step through the Zoom functions that they needed in order to attend and participate in virtual meetings. A PSW pointed out: “ We did a lot of one-on-one training and coaching and mentoring with people to help them get their virtual equipment set up. At first, it was a lot of, ‘this is how you set up Zoom, this is how you set up your camera’… and then more people got comfortable using it .”

PSWs also received training and support. Training included group and one-on-one sessions, and manuals were made available to provide instructions for an online environment: “In the beginning, we had training from a staff member who is a certified online facilitator… and it walked us through how to use Zoom. I also had one-on-one training… to walk me individually before doing any online groups… I asked my questions, and felt comfortable then to roll with it, [and] manuals were written with the policies of how we were gonna do this online.”

The social media team of the organization also became very active during the early days of the lockdowns. A manager who was part of this team described the role of the social media team: “We re-did all the posters we had for in-person, we switched them to virtual, giving new contact information, laying out the registration process…Every day we posted what groups we had going on, and all of that content had been created after the pandemic started. Again, a lot of that very quick adaptation to the needs.” We were also told that the organization added and adjusted online group activities and services as the lockdown policies and the needs of the peer community changed.

In sum, the findings show the challenges and solutions relating to using telecommunication technology for virtual mental health support during the COVID-19 pandemic. Accessing and providing these virtual services required access to and compatibility with devices, reliable internet connection, and technology-based skills, which could be challenging for some individuals. To address these challenging access boundaries, the organization arranged to provide devices, data, and internet connections, along with training and ongoing support to both peers and PSWs. Meanwhile, the organization also experienced a learning curve as it was adapting to the new circumstances and applied efforts to bridge the gaps in service access.

Maintaining a sense of community in virtual mental health support services

The peer support community already existed before the pandemic lockdowns. Peers would come to the organization locale for in-person services and programs, and many relied on these programs for mental health support. The lockdowns were disruptive of the in-person programs, which had to be halted, and as we elaborated earlier, the organization quickly responded by establishing services online. We were interested in whether and how a sense of community could be re-established and maintained in a virtual environment. Our findings point to five strategies in which the organization and the peers engaged, and which enabled maintaining a sense of community. We present these strategies next, and would like to point out that although we discuss them separately to facilitate the presentation, these strategies were not mutually exclusive.

Maintaining continuous presence and social interaction

In a context of increasing isolation, and to meet the needs of peers, the organization quickly began to offer phone services whereby peers and PSWs could connect by phone. Participants told us the phone support communicated a sense of caring and had a significant impact on individuals’ mental health during the pandemic. One of several volunteer peers who took on the task of checking on other peers regularly, indicated that for some individuals, their only connection to the outside world was through these phone calls: “ It could mean the difference between being stable and unstable… Being unstable for a long time could lead to something terrible .” Phone calls were not only about mental health topics, but could also include friendly conversations about daily living activities, which solidified relationships. The peers looked forward to these phone calls as a means of getting positive contact with someone who cared to listen. As one peer said, “They opened up a phone line and… I would call almost every day… I really needed [peer support]… So having that as a service was really, really good.” And another peer stated: “[It was great] knowing that they’re always there. It’s just the comfort of knowing there’s someone to reach out to. ”

It is important to note the speed with which the organization was able to adapt and to create programs that met the peers’ needs, thus maintaining a continuous presence. As a manager stated, “ [peer support] works well in a pandemic because we were able to be more flexible.” This is in contrast to institutional mental health services that were subject to various regulatory restrictions that would delay the introduction of online services. A PSW stated, “ we are extremely adaptable.”

In short order, the organization created a variety of online groups and activities in which peers could register and participate. These programs allowed the peers to continue interacting and engaging with one another. The sense of community was palpable even for peers who did not participate actively in the programs: “So for these people [like me], even though their videos and microphones are off, being immersed in the group, feeling like, hey, I’m not the only one, these are my people… and they look good and they’re talking and they’re feeling great. I feel good being there. And I may not want to say anything. It’s amazing. It’s a good feeling.”

Another peer commented on the relationships with the PSWs in the virtual meetings and said “… you can access [virtual support] anywhere and see the facilitators that you’re connected to. And that sometimes is enough to just make my spirit go fly. ” A similar sentiment was communicated by PSWs, one of whom stated: “We have things seven days a week that peers can come and join us. That has been really great; [it] helps keep the sense of community because we have that touchpoint with them. “

Establishing multiple points of connection

The organization was intent on meeting the diverse needs of peers, and to this end, created a variety of virtual programs and groups as well as phone services. In addition to the mental support groups, there were special activities such as yoga, crafting, and cooking, all of which instigated mutual support. These various activities could draw in diverse people who share similar interests, creating online communities. Peers stated that despite the lack of one-on-one eye contact, they found online groups were effective in offering valuable social activities related to wellness, nutrition, parenting, and gender-based support. One peer noted, “ They have a variety (of services)… Sometimes I’m in the mode of meeting [people], or joining arts and crafts. Sometimes I join the trivia online.” Another peer indicated that it was possible “to find the niche of the thing that you were looking for ” and a third peer stated: “ the trivia for me is very engaging… everybody can play. ”

The availability of multiple points of connection implied that the peers and PSWs could remain connected to each other on a regular basis. Another initiative by the organization to encourage this sense of community was the creation of a Facebook group. Due to the variety of points of contact, new members joined as they learned about the virtual services, expanding the community. However, the main aim of the organization remained to continue providing mental health support. A manager stated: “A lot of what people wanted was social connection, which we do offer in recreation. But we’re a support-based organization, and even our recreation has some support components to it. We came up with this private Facebook group which has helped a lot with that because people can stay in touch, not just with facilitators or with a group in a moment, but they can talk to each other whenever they want should they choose to join. “

Building on organizational and peer culture

Participants pointed out that peer culture is permeated by care and concern for members, and this was clear in various quotes we reported above from managers, PSWs and peers. In fact, managers and PSWs are also peers and they pointed this out continuously during our study. For example, a manager stated: “ It’s very helpful when peer support is informed by a community of people. And when peers can run some of their own services and see that peers are not only people who are recipients of services but actually are also managers ”. This manager also pointed out: “A peer-run community of peer supporters can help people meet different needs: their creative needs, their social needs, their support needs. There are physical needs, we’re doing some walking. We’re supporting people to get technology so they can not only take part in our Zoom meetings but also order their own groceries online or maybe they can talk to their doctor online now. Peer support has a lot of strengths.”

Another manager noted, “ It’s never just a job for people [at the organization]. It’s about how we can create something that is going to benefit the people who need it .” This focus on helping and supporting each other was integral to the organization’s mission and culture. This focus was shared by peers. Increased involvement of peer volunteers, who were not paid by the organization, in running services including the voluntary phone line was highlighted as an example of peer values and practices. A manager explained, “ One of the things that’s really important is to rely on the people who are actually DOING the thing, as opposed to me saying “well I know what’s good for this”, but actually leaning into our values .” Various participants mentioned that the implementation of online mental health support during the pandemic was an indication of resiliency in the peer support community. A peer stated “ We weren’t able to meet face to face. So people took it upon themselves to set up and organize these meetings and to learn how to use the technology to provide those services. ”

Acting collectively

The sense of community was also enabled by how decisions were made in the organization and with the help of peers. Deciding and acting collectively helped maintain a sense of community in the virtual space. This approach was especially effective during times of disruption that affected the organization and the peers. Overall, the organization’s collaborative approach to decision-making and focus on benefiting those in need were key components of its success.

The organization relied on discussion-based decision-making, with all staff members coming together weekly to discuss various issues and make decisions for the week. The management approach was collaborative and non-hierarchical. A manager said, “ We make decisions with the management collectively, and at times, when it’s appropriate, we make decisions with all staff .” Another manager described how “ the hierarchy felt a lot flatter” during the pandemic and the priority became “Who’s got what competencies? Who’s got what skills? Bring them in!” . Different members of the organization contributed their knowledge and skills to enhance the capacity to move services online. A PSW said: “We all bring our own perspectives. So I said my specialty is looking at the programming and the scheduling and what is feasible for us as staff… it was a lot of communication.”

Sharing lived experiences and learning together

Peer support is based on the shared lived experience of individuals. Sharing these experiences helps build bonds among peers. We were interested in how the virtual environment could have affected the sharing of experiences. Although some peers pointed out that they found it easier to share experiences in person, others– as we showed earlier– indicated that the online environment made it easier for them to participate. A PSW indicated: “We offer that space to just connect… Even though we’re saying “You gotta raise your hand before you talk”– that was an adjustment period. But now it’s the norm… That sense of belonging comes from connecting around shared lived experiences. So connecting around that shared lived experience is still happening. It’s just virtual, and a little more systematic.”

A peer described how the shared lived experience was helpful when using virtual services during the pandemic: “The ability to participate with other people who are struggling [was helpful], I just think that sharing those feelings and hearing that you’re not alone was worthwhile to me ”. Another peer reflected on the importance of the virtual services for connection around shared experiences of feeling “lost”: “It was a wonderful place to connect with people who were also struggling when everybody was sort of lost and in the same boat”.

Shared experiences were not limited to feelings of being lost and struggling. Members were also learning together, which solidified the sense of community. A peer pointed out: “[Relationships] became stronger in a sense, because we were all in the same boat… Sometimes the facilitators themselves were like I don’t know how to do that . We were all learning…and figuring things out. And I think that’s a good way to become closer to people. ”

In sum, various strategies were used by the organization and the collective (including PSWs and peers) to build and maintain a sense of community that was anchored in peer culture values.

Continuation of mental health support through a hybrid mode: importance of combining in-person and virtual services

Virtual peer services were “a lifeline” especially during the pandemic, as a peer noted. However, some peers also looked forward to returning to in-person services for various reasons. For some, the in-person services provided structure to their week and a chance to leave the house. A peer noted: “It forces me to get out of the house…I’m having difficulty leaving the house…half of me looks forward to it [the weekly support meeting], and half of me dreads it. But in the end, I get myself out of the door and I walk up to the center…I feel so much better afterwards.”

Naturally occurring conversations during coffee breaks or after the meetings, which contribute to supporting relationships, were missed. As one peer stated, “ A lot of it [peer support] is the action piece and when you’re connecting virtually, it’s just not the same as being in person ”. Some participants pointed out that in-person interactions offered a deeper level of connection through shared energy and physical space. A participant noted, “ When someone’s super upset, you can feel it. When people are in their own homes, it feels disconnected because there are so many other people there. I feel like we’re seeing less emotional distress, whereas in-person, it would be brought out– and not distress in the sense that they’re not coping, but that they’re bringing big feelings or things on their mind and they’re expressing them freely in person. I feel there’s a lot less of that since being virtual .” Additionally, some participants felt “strange” expressing strong emotions through a computer screen and pointed out that virtual settings offered less authentic connections compared to in-person interactions. Nonetheless, participants acknowledged that some people could still struggle regardless of the mode of interaction.

It was also pointed out that although virtual events drew in people who had never attended in person, some peers who used to attend in-person meetings did not join any virtual meetings, and it was not clear why this was the case or how they coped with the pandemic. Some of these individuals could not be found on online platforms to connect with. A participant stated, “… there’s a whole voice of those who can’t access virtual, those who have only been going in-person… So I think we definitely should try to cater to both [when designing mental health support services ]”.

Overall, peers expressed support for maintaining remote online mental health peer support services even as lockdowns were lifted, and pointed out that transitioning to a hybrid mode would offer efficiency in resource utilization and greater convenience for remote access. A peer emphasizing the need to continue the virtual services noted the importance of social integration for peers with disabilities: “ I think there’s a lot of people, especially with disabilities or just more issues who have a really hard time going in person. I feel like there’s a lot more people who were able to access services and I don’t think that they should just be cut off and done. ” Those living on the outskirts of the city or with other commitments had limited time to attend in-person support meetings, making hybrid services desirable after pandemic restrictions were lifted. Online meetings made mental health services more accessible, allowing individuals to manage their work-life domains more harmoniously. A peer said: “… People are always finding it a stress release and I like accessing it (peer support) from home sometimes instead of having to go to places…Sometimes I’m just not into seeing people, or going out and dealing with traffic.”

In sum, continuing with virtual services while also maintaining in-person services was seen as offering more access to peer support services to a broader population, and as providing more choice for individuals who sought peer support.

This study contributes to the literature in a number of ways. It emphasizes the importance of providing virtual peer support in situations where mental health in-person support and services are not possible or accessible. We have highlighted the technology-based challenges and opportunities that create boundaries and bridges respectively to peer support in a virtual space. We have shown that a hybrid model involving both virtual and in-person services offers better accessibility to individuals and groups in need of support, and have argued for the importance of maintaining both modalities. We have also shown that a sense of community can be established in a virtual space, and have highlighted the strategies that peer organizations and their members can utilize to maintain the community spirit. As importantly, we have contributed to the literature by including peer voices and highlighting their experiences in their own words. Researchers have pointed out that the experiences of service users have not been adequately researched [ 26 ] and this is particularly so in the case of peers [ 25 ]. Our research enhances understanding of service users’ lived experiences.

A hybrid model of peer support services

Our findings show, consistent with the literature, that each of virtual and in-person peer support service has its own advantages and disadvantages when used singularly, and that the joint operation of virtual and in-person services through a hybrid model provides more accessible service [ 32 ]. Using both approaches conjointly offers the opportunity to strengthen community-based mental health, and to reinforce recovery approaches that promote individual choice and self-determination. The importance and benefits of peer support and recovery approaches have been documented [ 33 ] and have been implemented increasingly across countries around the globe [ 1 ]. A hybrid model benefits service users in that during health system crises, such as a pandemic caused by an infectious disease when mental health needs are higher, access to mental health support can be maintained. Overall, this model offers promising potential as a vital resource to support the mental well-being of populations.

Using both models conjointly benefits not only service users and communities but also organizations that support mental health. By maintaining and strengthening both types of services, organizations that provide mental health services can build their capacities and be better prepared for sudden changes that might require suspending or limiting in-person services. This enhances flexibility and adaptability by maintaining a system that can dynamically switch between the two modalities.

Yet, despite the benefits of maintaining virtual services alongside in-person services, some PSWs and peers in our study reported a number of technology-related challenges that included difficulties obtaining internet connection or proper equipment, as well as limited skills with respect to the use of technology. Our findings are consistent with research which shows that providers and users of virtual mental health services report several limitations, such as difficulties with the adoption of the remote practice, and access and literacy challenges [ 11 , 34 , 35 , 36 , 37 ]. Our findings also show that to be effective, a mental health support system that utilizes a virtual mode of service delivery requires appropriate technological tools and infrastructure, as well as appropriate support. In the case we studied, the organization advocated for and obtained access to the internet and equipment for peers. Further, the organization allocated extensive time to the training of PSWs and peers. PSWs, once versed on the use of the technology, offered help to peers in group settings and one-on-one when necessary. This kind of assistance and collaboration is common in peer support communities, where principles of mutuality and cooperation prevail, but this also suggests the importance of providing adequate resources to peer support communities so they can achieve their full potential.

Another challenge associated with the virtual environment is that computer-mediated communications provide fewer social context cues; hence individuals who join an online community may experience less personal connection [ 23 ]. This challenge was identified by some of our participants, prompting us to ask how a sense of community may be established and maintained when peers connect virtually.

  • Sense of community

Ilioudi et al. (2012) refer to virtual communities in health care as “a group of people using telecommunication with the purposes of delivering health care and education, and/or providing support” [ 38 , p.1]. These communities encompass a wide range of clinical services and technologies. During the COVID-19 pandemic, there was increasing attention to online recovery services and phone support, self-help and mental health self-management delivered virtually or in e-communities [ 39 ]. E-communities are critical for mental health support and have the potential to transform the philosophical approach to the provision of mental health services as they help bridge the gap between the high prevalence of mental health challenges and the relatively low capacity of mental health systems [ 40 ].

In peer support communities, individuals share experiential knowledge to encourage and pursue recovery as a mutual goal, showing common purpose and interdependence [ 41 , 42 ]. Despite many peer support e-communities having been set up and having flourished during the COVID-19 pandemic and thereafter, there has been limited research on how the sense of community can be established or maintained in these groups. In studies of groups and communities more generally (and not only in the case of peer support), there has been focus on applying quantitative measurements and scales for the assessment of the sense of community, e.g., the Brief Sense of Community Index [ 43 ], and the Brief Sense of Community Scale [ 44 ]. These scales have been applied to study academic communities of practice [ 18 ], online education programs for different groups [ 45 – 46 ] and for individuals with serious mental illness living in community settings [ 47 ]. However, less research applies qualitative methods to explore in more depth this sense of community.

Literature shows that a sense of community is important in mental health support, especially during crises such as the COVID-19 pandemic [ 48 ]. A better understanding of the sense of community in virtual services could uncover factors that contribute to a positive therapeutic environment [ 49 ]. Our results identified five strategies to maintain a sense of community amongst peers and providers in a virtual environment during the COVID-19 pandemic. These findings highlight the importance of having a holistic and multidimensional perspective where the organization, providers, and peers all play a role.

The strategies we identified resonate with McMillan and Chavis’ conceptualization of a sense of community [ 20 ]. Their conceptualization highlights four elements: (a) membership (a feeling of belonging), (b) influence (a sense of mattering to the group), (c) integration and fulfillment of needs (a feeling that needs will be met through membership in the group), and (d) shared emotional connection (a belief that members have shared history and similar experiences). By “ acting collectively” (as in our findings), individuals reinforce the notion that they belong to a community where their contributions matter and are valued. Acting collectively also allows the community to fulfill common needs. “ Building on organizational and peer culture ” involves recognizing the contributions of individual members that could reinforce the belief that each member has a meaningful impact on the community. This culture is inclusive and fosters integration and emotional connection among the members. “ Establishing multiple points of connection ” ensures that community members have diverse channels to interact, collaborate, and meet their needs. “ Maintaining a continuous presence and social interaction ” helps establish trust that membership in the community is a reliable path for meeting their needs. Finally, “ sharing lived experiences and learning together ” allows members to open up about their mental health (or other) challenges, contributing to an emerging collective narrative and shared history. Other organizations attempting to build or maintain a sense of community in a virtual space may find some of these strategies employed by the organization, the PSWs and the peers to be helpful.

Limitations and directions for future research

Our study has a number of limitations. Concerns regarding security and privacy in virtual health care communities have been highlighted in research [ 10 , 50 ]. Researchers have also pointed to potential conflicts within online communities set up for various purposes [ 51 , 52 ]. Our paper did not examine these privacy and social concerns, however, evidence regarding these topics is important to provide guidance on how to make virtual spaces safe for peers who participate. Future research on these topics would be useful.

In addition, our findings pointed to peer support users who did not access the mental health support services when these transitioned to virtual platforms. We did not have access to these individuals, and it is not clear what factors contributed to their absence. Future research may explore whether and how technology-based boundaries become an impediment to seeking mental health support for some individuals. We also need a better understanding of the mental health of individuals who stopped using peer support when services moved online.

Our study focused on an organization and its members (PSWs and peers) and did not include in-depth attention to macro system level influences on or implications of peer support in a virtual space. The socio-economic aspects of adopting virtual work and services require further exploration including the financial return on investment and social returns (e.g. recovery) associated with using hybrid mental health support services. Overall, future research may identify and address system level influences that can hinder or facilitate mental health virtual services within community organizations, and how the needs of and services provided by these organizations may influence the allocation of resources and mental health indicators at a systems level.

Implications for policy and practice

Our findings highlight the organization’s efforts to provide accessibility and support for both peers and PSWs and demonstrate the value of a proactive and responsive approach to addressing major change. Organizational and management support has been identified as a central factor in employees’ readiness when change occurs in an organization [ 53 ]. In fact, the COVID-19 pandemic situation highlighted the adaptability and resilience of peer support services and communities. As a manager in our study pointed out, the peer support organization was able to quickly and flexibly respond to the sudden surge in need for mental health support at a time when more institutionalized and strongly professionalized services were struggling to adapt. The resilience and adaptability of peer support organizations and programs are strengths in mental health care systems that are struggling to meet the needs of populations [ 1 ], yet these organizations and programs often receive a relatively small share of health care resources. Future policy may consider a more equitable allocation of resources to peer support services.

Another policy-related implication pertains to technology infrastructure and more specifically to who gets access to devices (such as smart phones and computers) and internet connections. Our study highlighted that lack of access to these resources was a boundary that challenged some peers seeking virtual support services. The peer support organization stepped in to create bridges by advocating with funders and tech providers. However, this leaves unsolved an issue that needs to be addressed at a higher societal level, namely the limited, yet necessary, resources available to some segments of the population (typically homeless individuals, people with disabilities, refugees and other groups). This issue should be an important consideration in future policy.

Finally, our study pointed to several practical implications based on the experience of the case we studied. For example, we pointed to the various strategies that peer organizations can use to maintain a sense of community in a virtual space. Further, in anticipation of the growth of virtual peer support services, organizations may consider the need for renewed training modules that integrate necessary skills relating to using technology for recovery support. Peer support organizations may also consider building their capacity to respond quickly to crises and major changes, as it is during these situations that their services may be in most demand.

The important role of mental health community services and the changing drivers in mental health systems have been noted by researchers. Norton (2023) points out that “ mental health services are currently undergoing immense cultural, philosophical, and organizational change. One such mechanism involved in this change has been the recognition of lived experience as a knowledge subset in its own right ” [ 54 , p.1]. The trends of peer support gaining in importance and being delivered in virtual as well as in-person spaces are poised to continue in the future. It is incumbent on researchers to continue studying the challenges and opportunities of peer support in its various models. Our study has been a step in this direction.

Data availability

The dataset used in this research is not publicly available as set out by the research ethics approval from the University of Ottawa and the consent forms signed by the participants. Further information is available from the corresponding author upon request.

Abbreviations

Peer Support Worker

United Kingdom

United States

World Health Organization

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Acknowledgements

The authors would like to thank the peer support organization, the peer support workers and the peers who kindly shared their experiences with us.

This research was financially supported by the Partnership Engage Grants COVID-19 Special Initiative from the Social Sciences and Humanities Research Council (SSHRC), Fund # 1008-2020-1020.

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This article is part of EM’s doctoral thesis. EM and SC contributed to the study conception and design. Data collection was done in collaboration, and analysis and manuscript drafting were performed by EM, and were thoroughly reviewed by SC. Both authors critically revised the drafts until finalized.

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Mirbahaeddin, E., Chreim, S. Transcending technology boundaries and maintaining sense of community in virtual mental health peer support: a qualitative study with service providers and users. BMC Health Serv Res 24 , 510 (2024). https://doi.org/10.1186/s12913-024-10943-y

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  • Mary Wiktorowicz 1 , 2 ,
  • Marc K. Yambayamba 7 ,
  • Amy Yau 8 &
  • Tarra L. Penney 1 , 2 , 3  

Globalization and Health volume  19 , Article number:  82 ( 2023 ) Cite this article

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Emerging infectious diseases of zoonotic origin present a critical threat to global population health. As accelerating globalisation makes epidemics and pandemics more difficult to contain, there is a need for effective preventive interventions that reduce the risk of zoonotic spillover events. Public policies can play a key role in preventing spillover events. The aim of this review is to identify and describe evaluations of public policies that target the determinants of zoonotic spillover. Our approach is informed by a One Health perspective, acknowledging the inter-connectedness of human, animal and environmental health.

In this systematic scoping review, we searched Medline, SCOPUS, Web of Science and Global Health in May 2021 using search terms combining animal health and the animal-human interface, public policy, prevention and zoonoses. We screened titles and abstracts, extracted data and reported our process in line with PRISMA-ScR guidelines. We also searched relevant organisations’ websites for evaluations published in the grey literature. All evaluations of public policies aiming to prevent zoonotic spillover events were eligible for inclusion. We summarised key data from each study, mapping policies along the spillover pathway.

Our review found 95 publications evaluating 111 policies. We identified 27 unique policy options including habitat protection; trade regulations; border control and quarantine procedures; farm and market biosecurity measures; public information campaigns; and vaccination programmes, as well as multi-component programmes. These were implemented by many sectors, highlighting the cross-sectoral nature of zoonotic spillover prevention. Reports emphasised the importance of surveillance data in both guiding prevention efforts and enabling policy evaluation, as well as the importance of industry and private sector actors in implementing many of these policies. Thoughtful engagement with stakeholders ranging from subsistence hunters and farmers to industrial animal agriculture operations is key for policy success in this area.

This review outlines the state of the evaluative evidence around policies to prevent zoonotic spillover in order to guide policy decision-making and focus research efforts. Since we found that most of the existing policy evaluations target ‘downstream’ determinants, additional research could focus on evaluating policies targeting ‘upstream’ determinants of zoonotic spillover, such as land use change, and policies impacting infection intensity and pathogen shedding in animal populations, such as those targeting animal welfare.

The increasing incidence of zoonotic emerging infectious diseases (EIDs) has been attributed to behavioural practices and ecological and socioeconomic change, and is predicted to continue in the coming years [ 1 ]. Higher levels of anthropogenic activity, including agricultural intensification, urbanisation and other forms of land use change, have led to increased interactions between wildlife, humans and livestock, increasing the risk of cross-species transmission [ 2 , 3 , 4 ]. Meanwhile, accelerating rates of globalisation and urbanisation, leading to increased global movement of people and goods and more dense human settlements, have made outbreaks of disease in human populations more difficult to contain [ 5 ]. In response, a call has been issued by leading organisations and experts, including the United Nations Environment Programme, the International Livestock Research Institute and the Intergovernmental Science-Policy Platform on Biodiversity and Ecosystem Services, to complement reactive policy responses with policies that prevent zoonotic EIDs [ 1 , 6 , 7 , 8 , 9 , 10 ]. This approach, sometimes called deep prevention, would need to target upstream drivers to reduce the risk of outbreaks occuring [ 11 ].

Zoonotic spillover, defined as the transmission of a pathogen from an animal to a human, depends on the alignment of ecological, epidemiological and behavioural factors [ 12 ]. Zoonotic pathogens must be transmitted across a spillover pathway (Fig.  1 ) in order to induce infections in humans [ 12 , 13 ]. This involves meeting a series of conditions including appropriate density and distribution of reservoir hosts, pathogen prevalence, infection intensity and human exposure [ 12 ]. Across this pathway, a number of drivers of zoonotic spillover have been identified, including changes in wildlife and livestock populations [ 14 ]; deforestation, urbanisation and other forms of land use change [ 15 , 16 ]; bushmeat consumption [ 17 , 18 , 19 ]; and a variety of human practices including hunting, farming, animal husbandry, mining, keeping of exotic pets and trade [ 8 , 9 , 20 , 21 , 22 ]. These large-scale changes have repeatedly given rise to spillover events [ 2 , 15 , 23 ], sometimes involving pathogens with epidemic or pandemic potential [ 24 ].

figure 1

Spillover pathway adapted from Plowright et al. [ 12 , 13 ]

The responsibility for addressing zoonotic disease frequently spans multiple sectors of governance due to its relevance for both animals and humans. A One Health perspective, which recognises the health of humans, animals and the environment as being closely linked and inter-dependent [ 25 ], can be useful in understanding the spillover pathway and drivers of spillover events, as well as informing policy and governance approaches to address this cross-sectoral problem. At the international level, the World Health Organization, the Food and Agriculture Organization, the World Organisation for Animal Health and the United Nations Environment Programme have endorsed a One Health approach to policymaking to respond to zoonotic infectious diseases, emphasising collaboration between agencies [ 26 ].

Operationalising a One Health approach to policy

While One Health is a promising approach to preventing zoonotic EIDs, operationalising this concept remains a challenge. Evaluative evidence exists around the effectiveness of interventions to prevent spillover events [ 13 , 27 , 28 , 29 ], however these have often been implemented as short- to medium-term programmes or academic investigations [ 8 ]. In some cases, zoonoses have re-emerged after successful programmes have ended [ 29 ]. As a result, experts have argued for the incorporation of successful interventions into policy frameworks, providing interventions with the sustainability required for long-term disease control [ 8 , 10 ].

Operationalising a One Health approach to policy involves understanding the policy options, identifying the stakeholders involved and developing insights into how to successfully implement and evaluate these policies. Although the longevity and scope of government actions may make policy an effective vehicle for prevention of emerging diseases, implementing policy is a complex process involving numerous actors with competing views and interests [ 30 ]. This context presents challenges for policy development and implementation. Where relevant policies are designed and implemented in isolation, opportunities for co-benefits may be missed and interventions may produce unintended consequences [ 31 ]. Finally, while evaluative evidence is key to informing future policy decisions, the complex systems in which policies are often implemented make evaluation challenging [ 32 ].

Aims and scope

To provide insights around how to use policy to successfully prevent zoonotic spillover events, it is necessary to synthesise the available evaluative evidence. A One Health perspective allows this evidence synthesis to incorporate a wide range of policy instruments and actors and to identify approaches to successfully implementing and evaluating policies in this complex, multi-sectoral context.

Approaches to managing epidemic and pandemic infectious pathogens when they have entered human populations have been systematically catalogued in the medical literature [ 33 , 34 , 35 , 36 , 37 , 38 , 39 ]. These measures include hand washing, face masks, school closures, contact tracing, vaccination and case isolation. Further upstream, systematic reviews of interventions targeting the spillover pathway have predominantly focused on programmes rather than policies, and have been restricted by various characteristics such as geographic region [ 28 ] or pathogen type [ 29 ], or focused on programmes with an explicit endorsement of a One Health approach [ 27 ]. In consequence, a comprehensive understanding of what policies to prevent zoonotic spillover have been evaluated, what actors are involved, and how to successfully implement and evaluate them, is lacking. To address these research gaps, our objective was to synthesise the existing evaluative evidence around policies that target the determinants of zoonotic spillover.

Our approach to identifying and analysing this literature was informed by a One Health perspective, acknowledging the inter-connectedness of human, animal and environmental health.

We conducted a systematic scoping review of evaluations of policies aimed at preventing zoonotic spillover events, based on a previously published protocol [ 40 ]. Results are reported in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews [ 41 ]. The scoping review was conducted in line with guidelines published by Arksey and O’Malley and refined by Levac and colleagues [ 42 , 43 , 44 ], which emphasise an iterative approach suited to an exploratory research question.

The One Health perspective guided the development of the review methodology. This included the search strategy and inclusion criteria, which allow for the inclusion of policies focused on human, animal or environmental health (or any combination of these areas) and with leadership from one or more of these sectors, and the research questions, which seek to outline the policies and the range of sectors involved in implementation. While our focus on the spillover pathway meant we only included policies that had been evaluated in terms of their impacts on animal and human population distributions, health and interactions, we explicitly searched for environment-focused policies (e.g., protection of wetlands and other wildlife habitats) that might have been evaluated from this perspective. We also aimed to interrogate the One Health approach to governance, by assessing to what extent cross-sectoral collaboration – a key tenet of One Health practice [ 25 ] – emerged as a reason for policy success.

Stage 1: identifying the research question

Informed by our research objective, our research questions were:

What policies aimed at preventing zoonotic spillover (i.e., policies that target the determinants of zoonotic spillover included in the spillover pathway [ 12 ]: population distribution, health and interactions) have been evaluated?

What are the types of policies?

Which policy actors (single department, multi-sectoral, whole of government) are involved?

What are the reasons for policy success and failure, and the unintended consequences of implementing these policies?

How has evaluation of these policies been approached in the literature?

What are the methods or study designs used?

What are the outcomes?

What are the opportunities and challenges for evaluation?

Stage 2: identifying relevant studies

We systematically searched four electronic databases (Medline, Scopus, Web of Science, Global Health) in May 2021. The search strategy was organized by the main concepts in our research question: the spillover pathway; public policy; prevention; and zoonotic pathogens. The search strategy was developed iteratively, informed by existing systematic reviews focused on related concepts [ 28 , 45 , 46 , 47 , 48 , 49 ] and known indicator papers meeting inclusion criteria. We also searched the websites of 18 organisations involved in the prevention of zoonotic spillover to identify relevant grey literature. The choice of organisations was informed by an actor mapping exercise in which we identified key international organisations working on the prevention of emerging zoonoses using network sampling [ 50 ]. We searched the websites of a subset of these organisations, focusing on inter-governmental organisations and organisations whose main focus was zoonotic disease. See Supplementary File 1 for details of academic database and grey literature search strategies.

Stage 3: study selection

Studies were included if they met the following criteria:

Primary empirical study with an English-language abstract from any country or region (reviews were excluded);

Study reporting empirical findings from an evaluation of any sort; and.

Study focused on a policy implemented by government that targets the determinants of zoonotic spillover.

Academic records identified through the searches were collated and double screened using the online platform Covidence [ 51 ]. Two researchers (CCA and KML) initially screened titles and abstracts. Title and abstract screening of an initial set of 100 papers was undertaken by both researchers independently. Results were compared to ensure consistency in decisions around study eligibility, and discrepancies were resolved through consensus. This process was repeated until an acceptable level of agreement (> 90%) was reached. The remaining papers were then screened by one of the two reviewers. Full-text screening was undertaken by two independent researchers and discrepancies were resolved by consensus. Studies with full-texts in any language were eligible for inclusion if they include an English-language abstract. Full-text studies published in French, Spanish or Chinese were single-screened by a member of the research team fluent in that language (CCA or AY). Studies published in other languages were translated as necessary.

Grey literature was screened by one researcher (CCA) to determine whether it met the inclusion criteria. Publications were initially screened by looking at titles, tables of contents and executive summaries. Where these indicated that the publication might be eligible, documents were read in full to determine if inclusion criteria were met.

In line with published guidelines, the approach to study selection was refined iteratively when reviewing articles for inclusion [ 42 , 43 , 44 ].

Stage 4: charting the data

Data charting was conducted using a form designed to identify the information required to answer the research question and sub-research questions (see Supplementary File 2). Data charting focused on characteristics of the study, the policy, and the evaluation. For each policy, this included identifying which determinant of zoonotic spillover situated along the spillover pathway was being targeted. For the purpose of this study, we used a model of the spillover pathway adapted from Plowright et al.’s work [ 12 , 13 ], in which we differentiated between wildlife and domesticated animals (Fig.  1 ). This differentiation is important in the policy context, as the wildlife-domesticated animal interface is an important site for intervention, as well as the human-animal interface.

The data charting form was piloted with ten records to ensure that it was consistent with the research question, and revised iteratively [ 42 , 43 , 44 ]. Data charting was conducted by one researcher (CCA, RM, JC, AD or PS) and checked by a second researcher (CCA or KML). Discrepancies were resolved by consensus.

Stage 5: collating, summarising and reporting the results

Our protocol stated that we would use the Quality Assessment Tool for Quantitative Studies developed by the Effective Public Health Practice Project [ 52 ] to assess study quality [ 40 ]. However, on reviewing the included studies we selected two tools that were more appropriate to their characteristics: (1) ROBINS-I [ 53 ] for quantitative outcome evaluations and (2) a tool developed by the authors of a previous review [ 54 ] – based on Dixon-Woods et al.’s approach to assessing study credibility and contribution [ 55 ] – for all other study types. Two researchers (CCA and KML) assessed study quality independently for an initial set of 10 studies, before comparing assessments and reaching agreement where discrepancies occurred. This process was repeated until an adequate level of agreement was reached (> 90%). The remaining studies were assessed by a single researcher (CCA or KML). Records were not excluded based on quality assessment. Instead, assessments were primarily used to help synthesize the literature on how policies were evaluated. Quality assessment was not performed on grey literature due to the wide variability in the format and comprehensiveness of included publications.

We analysed the charted data, presenting a numerical summary of the included studies in table form, allowing us to describe the range of policy interventions that have been evaluated, aspects of policy implementation and approaches to evaluation. Based on the charted data, we inductively grouped evaluated policies with similar characteristics into policy types and assigned a policy instrument to each policy type: communication/marketing, guidelines, fiscal, regulation, legislation, environmental/social planning or service provision. We mapped policy types onto the spillover pathway shown in Fig.  1 to outline the policies that have been used to target each of these determinants. Thematic analysis was conducted using the approach described by Braun and Clarke where the focus is guided by the researcher’s analytic interests [ 56 ], with five overarching themes chosen as an a priori coding framework: (1) reasons for policy success; (2) reasons for policy failure; (3) unintended consequences of policy implementation; (4) opportunities for policy evaluation; and (5) challenges for policy evaluation. We selected these themes based on our research questions and previous familiarisation with the included articles during the process of article selection, data extraction and quality assessment. Sub-themes were subsequently identified through close reading and coding of the included articles. Thematic analysis was conducted by one researcher (RM) using the qualitative data analysis software Dedoose [ 57 ] and reviewed by the lead author (CCA).

Study characteristics

After removing duplicates, our searches identified a total of 5064 academic records. After screening titles and abstracts, we considered 330 records for full-text review. We also identified 11 relevant publications through our grey literature search. Grey literature reports were published by five organisations: four organisations focused on health and disease, including an intergovernmental organisation (the World Organisation for Animal Health) and three non-governmental organisations (the One Health Commission, the Global Alliance for Rabies Control and EcoHealth Alliance); and one non-governmental organisation focused on wildlife trade (TRAFFIC). In total, we included 95 publications in this review (PRISMA diagram in Fig.  2 ) [ 58 ].

We excluded studies which assessed the unintended consequences of policies to prevent zoonotic spillover without evaluating their effectiveness. This included studies that looked exclusively at the mental health impacts of mandatory livestock culls on farm workers [ 59 ]; studies which focused on potentially relevant factors, such as the wildlife trade, but with no consideration of outcomes situated on the spillover pathway [ 60 ]; and studies which assessed the detection power of surveillance systems without assessing the impact of associated policy interventions [ 61 , 62 , 63 ].

Policy characteristics

The characteristics of the policies evaluated in the included studies are presented in Supplementary File 3 and summarised in Table  1 . Some studies evaluated more than one policy, particularly modelling studies which compared the impacts of several policy options and process evaluations focused on a range of activities undertaken by a single government. Therefore, the number of evaluated policies (n = 111) is greater than the number of included studies (n = 95).

Most policies were evaluated for their impact on human exposure (21%), pathogen prevalence in domesticated animals (18%), barriers within domesticated animals (15%), and pathogen survival and spread in domesticated animals (9%). There were also a number of multi-component policies studies across multiple stages of the spillover pathway (18%). Fewer studies focused on wildlife health and populations, and none of the included studies evaluated policies for their impact on infection intensity and pathogen release in either domesticated animals or wildlife.

Where the government department responsible for implementing a policy was identified in the paper, most policies were implemented by a single department (35%), although there were a number of multi-sectoral efforts (24%). The range of government sectors responsible for implementing policies to prevent zoonotic spillover included human health, animal health, food safety, agriculture, conservation, national parks, forestry, fisheries, environmental protection, border control and foreign affairs. Policies were predominantly intended to be implemented by private sector actors, including individuals and organisations working in trade, retail, hunting and animal agriculture. However, some policies were also implemented by public sector actors working in public health, veterinary public health and environmental conservation.

Most policies were situated in high-income (49%) and upper middle-income (28%) countries, with studies from East Asia and the Pacific (43%) and Europe and Central Asia (19%) dominating. Publications focused on policies targeting various zoonotic diseases, with the most common being avian influenza (50%), rabies (19%), brucellosis (11%) and Hendra virus (4%).

Most policies were evaluated using process (38%) or outcome (31%) evaluation. The most frequently used policy instrument was legislation (59%), particularly for managing pathogen spread in domesticated animals through measures such as mandatory vaccination, culls or disinfection protocols. Meanwhile, communication and marketing or service provision was more typically used to reduce risk in wildlife and human populations, for example by providing guidance around recommended hygiene protocol, by distributing oral vaccination in wildlife habitat or by offering vaccination to human populations.

figure 2

PRISMA 2020 diagram [ 58 ]

What policies aimed at preventing zoonotic spillover have been evaluated?

Policy types targeted different determinants across the pathway to zoonotic spillover and used various approaches with different evidence of success (Table  2 ). We identified policy options including culling – both general and targeted – of wild and domesticated animals; habitat protection (limiting activities such as agriculture and animal husbandry in wildlife habitats); supplemental feeding to control wildlife movements; vaccination of both wildlife, domesticated animals and human populations with occupational exposure to animals; policies to improve biosecurity in sites where animals are kept, slaughtered and sold, including mandates and information campaigns; live animal market closures; and bans on hunting and selling wildlife. Where outcomes or impacts were evaluated, most policies saw some level of success (i.e., outcome measures were found to vary in a direction that indicated policy success), though relative effectiveness was not assessed due to variation in study design and outcome measure. Policies with consistent evidence of effectiveness – where outcome measures varied in a direction that indicated policy success in all studies included in the review – included culling and sterilisation of wildlife populations, habitat protection, vaccination in wildlife and domesticated animal populations and mandated disinfection protocols. Policies with equivocal evidence of success (i.e., outcome measures varied in different directions or studies had different findings, some indicating success and some indicating failure) included supplemental feeding of wildlife, pre-emptive livestock culls, live animal market closures and bans on wildlife hunting, trade and consumption. For many policies, there were no impact or outcome evaluations identified in this review.

What are the reasons for policy success?

The evidence from the identified impact and outcome evaluations suggests that most of the policies succeeded to some extent. A range of factors contributed to policy success. First, studies emphasized the importance of effective collaboration and coordination between various agencies, disciplines, and levels of government in the execution of policy directives [ 114 , 115 ], in line with a One Health approach to policy and governance. Policy success was attributed, in part, to strong working relationships that encouraged effective communication between various government agencies, and facilitated timely and appropriate policy responses [ 115 ]. Synergy between agencies responsible for surveillance and the execution of control strategies was also reported to be beneficial. For example, prompt communication and effective collaboration between laboratories testing samples and agencies implementing culls in the field was seen as important in the control of highly pathogenic avian influenza in Nigeria [ 116 ]. Similarly, authors also identified the importance of private-public relations and private sector contributions to implementing policies to prevent zoonotic spillover [ 112 ]. This included stronger government engagement with private veterinarians as a factor for success in reducing the spillover of Hendra virus in Queensland [ 109 ], and with farmers, poultry companies and national farming and poultry processing associations in Ghana as part of a successful campaign to reduce risk from highly pathogenic avian influenza [ 112 ]. Studies suggest that the inclusion of private sector stakeholders in the policy process has the potential to improve compliance through transparent dialogue around disease ecology, risk and risk mitigation [ 90 , 91 , 103 , 117 ]; and highlight the utility of participatory approaches in prompting behaviour changes [ 91 ].

Second, authors emphasised the significance of economic incentives, suggesting that policy impact is dependent on private actors’ appraisal of costs and benefits. Studies illustrated how incentives, including compensation, subsidies, rebates, and fines, have had varying degrees of success [ 91 , 97 , 112 , 115 ]. Compensation levels [ 104 , 114 ] and enforcement practices [ 92 ] were identified as salient factors for compliance and adherence. For example, fear of sanctions for bushmeat hunting while a ban was in place in some parts of West Africa were identified as a stronger incentive to avoid bushmeat hunting than the fear of contracting Ebola virus [ 97 ]. Culls were seen as particularly challenging in this regard: while the long-term benefits for farmers may outweigh the financial loss [ 104 ], authorities need to be conscientious of the substantial economic impacts when considering policies that mandate culling or safe disposal [ 95 ]. The direct losses related to compliance (time, labour and expenses) and indirect losses due to price fluctuations and decreases in trade volume, as well as losses to associated industries, are substantial [ 88 , 96 , 113 , 118 ].

Third, trust in government and public support for implemented policy were specified as critical factors influencing the effectiveness of disease control strategies, and research suggests that strategic engagement to facilitate compliance is a necessary step in the policy process [ 97 ]. Participatory approaches that attempt to identify and understand factors influencing compliance have been consistently used to overcome resistance to policy, as insights from engagement and consultation can lead to solutions that facilitate behaviour change at the population level [ 91 , 103 ]. For example, a World Health Organization initiative to reduce avian influenza transmission in poultry markets in Indonesia worked alongside market vendors to achieve its aims, carrying out repeated consultations with the vendors and implementing market infrastructure (such as energy and running water in the market) in collaboration with local authorities to support vendor behaviour change [ 91 ].

Fourth, studies also demonstrated the importance of public communication. The quality of information, as well as the volume, complexity and delivery of public health messages, were key factors [ 75 , 114 ]. Authors contend that communication strategies must understand the target audience and how they interpret and engage with messages [ 97 ], for example by building on relationships where there is exiting trust, such as between veterinarians advising animal vaccination and animal owners [ 117 ]. Homogenously delivered communication strategies were ineffectual: they limited opportunities for open discourse; discounted contradictory lived experiences and expressions of uncertainty; and ultimately contributed to scepticism surrounding implemented policies [ 97 , 117 ].

Finally, studies underscored the importance of surveillance infrastructure to inform intervention strategies. Surveillance programs with the ability to collect and operationalize relevant data were essential to the development of appropriate interventions that are responsive to each unique context [ 115 , 119 ]. Implementing effective surveillance programmes requires the appropriate evaluation tools [ 120 ] and trained personnel [ 81 ].

What are the reasons for policy failure?

Studies showed that perceptions of acceptability and appropriateness were crucial to the effectiveness of implemented policies [ 101 , 104 ]. Several factors were identified that negatively affected acceptability and appropriateness, including: additional expenses for private sector actors without sufficient support [ 75 , 100 , 104 , 112 , 114 ], particularly were culls were demanded but reimbursement for farmers was slow and inadequate, as in a brucellosis eradication campaign in Macedonia [ 81 ]; lack of affordable alternatives [ 97 ]; impracticality of implemented strategies [ 75 , 101 ]; lack of cultural understanding in designing policy interventions [ 97 , 100 ], for example the distribution of footwear to pig farmers in a Polynesian context where footwear was not traditionally worn [ 100 ]; lack of understanding of viral ecology [ 100 ]; as well as public scepticism and distrust [ 97 , 114 ].

Additionally, policy ineffectiveness was associated with poor planning and execution of intervention strategies, including lack of clear direction [ 114 ]; incomplete or inconsistent implementation of control measures (17); limited scope of intervention [ 114 ]; and poor enforcement [ 92 ]. A lack of adequate resources to implement strategies also contributed to policy failure [ 81 ]. Adequate financial resources were necessary to hire and train staff to run surveillance and control operations [ 81 ]. Financial resources were also necessary to fund compensation mechanisms that facilitate compliance. Willingness to adopt policy-prescribed disposal practices was found to be associated with compensation levels (incentives) as a proportion of production price, dependency on income from activities driving zoonotic risk, and contact with prevention staff [ 92 ].

What are the unintended consequences of implementing policies to prevent zoonotic spillover?

A small number of the included studies collected data on the unintended consequences of policies to prevent zoonotic spillover (n = 18). In some instances, unintended consequences were due to disease ecology or human behaviour as a result of policy failure. For example, a study assessing the impacts of the closure of a live poultry market found that, following the closure, vendors travelled to neighbouring markets to sell their animals [ 94 ]. As a result, while cases of avian influenza decreased in the area surrounding the closed market, cases increased in these neighbouring markets, leading to the wider geographic spread of the disease. In another study, elk were provided with supplementary feeding grounds to discourage them from coming into contact with the livestock who shared their range [ 65 ]. While this intervention had the intended consequence of reducing the transmission of brucellosis between elk and livestock, the spread of brucellosis between the elk using the supplementary feeding grounds – who were gathering in larger, tighter groups for longer periods, resulting in higher within-herd transmission – and other elk populations in the area increased. This resulted in an increasing prevalence of brucellosis among the elk, potentially increasing the risk of spillover to livestock. These examples illustrate the complexity of the social and ecological systems in which these policies are implemented, further suggesting the need for a One Health approach to policies to prevent zoonotic spillover.

A key unintended consequence can be attributed to the loss of profits and livelihoods sometimes associated with policies to prevent zoonotic spillover, as described above. The losses incurred by complying with regulations made farmers, hunters and other private sector actors reluctant to report potential infections, contributing to increased unauthorized or illegal activity, and unrestrained spread of disease [ 90 , 92 , 94 , 98 , 112 , 114 ]. Studies investigated the creative ways policy enforcement was circumvented, including hiding hunting equipment on the outskirts of towns or developing informal trade markets and networks [ 97 , 98 ]. Unintended consequences identified in the included evaluations emphasize an opportunity for policymakers to improve sector compliance through public education, levying the influence of consumer attitudes on industry standards [ 104 , 113 ].

A range of study designs were used to evaluate policies. Outcome evaluations (n = 33) used time series or repeat cross-sectional data to conduct evaluations of natural experiments, though most studies did not include a control group for comparison. Outcome evaluations also used case-control and modelling approaches to assess policy impact on an outcome of interest. Process evaluations (n = 30) used cross-sectional and qualitative approaches, as well as study designs combining multiple sources of data, to understand aspects of policy implementation such as the extent to which the policy was being implemented as designed, and the responses and attitudes of stakeholders involved in policy implementation. Economic evaluations (n = 11) included cost-benefit analyses, risk-benefit analyses and modelling studies. Formative evaluations (n = 17) used modelling approaches to estimate what the impacts of a proposed policy option would be in a specific context.

Outcome variables interpreted as indicators of policy success were also numerous and represented determinants along the spillover pathway. As expected, many studies assessed impact on disease transmission, including disease prevalence and incidence, disease eradication, case numbers, and basic reproduction number in human and animal populations, as well as evidence of disease in environmental samples, such as in live animal markets or at carcass disposal sites. Studies also assessed impacts on intermediate factors indicative of successful implementation of specific policies, such as the availability of wild species in markets where a trade ban had been implemented, or knowledge and practices of stakeholders in response to an educational or information campaign.

While most studies found a reduced risk of zoonotic spillover following policy implementation, comparing the magnitude of these impacts was challenging due to the variety of study designs and outcome measures used in the included studies. However, we identified several studies which used modelling to directly compare the impacts of policy options. These studies evaluated various policy scenarios: different combinations within multi-component policy interventions [ 121 ]; culling versus vaccinating wildlife [ 122 ] and livestock [ 84 , 85 ] populations; targeting strategies to humans exclusively versus targeting humans and livestock [ 108 ]; and altering the parameters for culling and vaccination strategies, for example by modelling different ranges for culling and vaccination near infected farms [ 85 ]. These studies often highlighted trade-offs between the effectiveness of policy measures and their cost. For example, estimates of the number of infected flocks were lower when incorporating a ring cull (cull of animals on farms surrounding an outbreak) into a multi-component control strategy for highly pathogenic avian influenza [ 121 ]. However, livestock vaccination was estimated to be a highly effective strategy, with one study findings livestock vaccination to be as or more effective than a pre-emptive cull for outbreak control purposes (depending on the extent of vaccination coverage), while minimising the number of animals culled [ 85 ]. One study jointly modelled costs and benefits of strategies, and found that livestock vaccination had a higher cost-benefit ratio than a wildlife cull [ 122 ]. A final study highlighted the potential of holistic approaches, with drug administration in humans and livestock having a lower cost per disability-adjusted life year averted than intervention in humans alone [ 108 ].

Study authors noted a number of challenges encountered while evaluating policies to prevent zoonotic spillover. One study noted the difficulty of determining the impact of policies aiming to reduce spillover events between wildlife, livestock and humans, as the number of spillover events is often relatively small [ 65 ]. This highlights the importance of considering upstream determinants and risk factors as outcome measures in attempting to evaluate these policies, particularly where spillover events may happen infrequently or not at all during the period of observation. Studying changes in risk factors for spillover can provide insight on the effectiveness of different policies in tackling spillover risk.

Lack of suitable data was a frequently cited barrier to policy evaluation. As policies to prevent zoonotic spillover are often reactive, being implemented in response to an outbreak in animal populations, accessing data from before a policy was implemented was challenging. Studies highlighted the value of routinely collected data, which was often the only data available and was frequently used for policy evaluation [ 65 , 66 , 94 , 115 , 119 , 123 ]. However, in many contexts routine data on animal health is not collected [ 80 ]. Routine testing data from livestock can sometimes be used for evaluation where it exists, but it does not always provide sufficient detail for examining the potential for a policy to prevent zoonotic spillover. For example, some tests do not differentiate between current and past infection, making it difficult to identify where and when spillover occurred [ 65 ], and animal health data may not be granular enough for policy evaluation, particularly in terms of evaluating local policies [ 94 ]. Studies also highlighted instances where the private sector may own data sets reporting disease prevalence and transmission, but may be reluctant to share the data for evaluation purposes [ 121 ]. In such instances, open communication and good relationships with the private sector may be facilitators to evaluation.

Beyond the lack of baseline data, studies highlighted the difficulty in collecting information about policy compliance. As failing to comply often puts farmers and hunters at risk of fines or imprisonment, they were reluctant to disclose information about non-compliance or participation in illegal trade and sale of animals [ 86 , 92 , 97 , 112 ]. This made it difficult to determine policy effectiveness.

Quality assessment

Of the 44 quantitative evaluations, 37 were evaluated as being at moderate or higher risk of bias (see Supplementary File 4), given the possibility of bias in the assessment of intervention impact due to the presence of confounding effects. A small number of studies were determined to be at serious (n = 6) or critical (n = 1) risk of bias, for two main reasons: only having data from after the intervention was implemented; or using a case-control study model without measuring and adjusting for important potential confounders, such as the prevalence of a targeted disease prior to policy implementation. These limitations may reflect the nature of zoonotic spillover events and policy responses, which can happen quickly and leave little time for baseline data collection. Many of the included studies relied on surveillance data, but where such data sets are not available, post-test and case-control study designs may be the only options.

The quality of studies assessed with the tool developed based on Dixon-Woods’ approach [ 55 ] was high overall (n = 41, see Supplementary file 5). Most studies were rated as high in terms of clearly and comprehensively presenting their results (n = 37), analysis (n = 34), research design (n = 33), aims (n = 32) and research process (n = 28). Most studies also had a high relevance to the research question (n = 31), indicating that the research was embedded in policy, being commissioned, co-designed or conducted in partnership with government stakeholders.

We identified a range of policies targeting different parts of the spillover pathway implemented by various policy and governance sectors, including some multi-sectoral initiatives. Policies tended to rely heavily on private sector actors (including actors ranging from small-scale farmers and hunters to larger commercial operations) for implementation, suggesting that open communication and collaboration with these actors was essential for successful policy implementation. Policy success was undermined by lack of collaboration between government agencies; lack of communication between surveillance and control operations; poor understanding of the context in which policies were implemented; and inadequate financial compensation for private sector actors who lost profits and incurred additional costs by complying with policies. Where policies were ineffective, this tended to be due to unintended consequences relating to complex dynamics within the social and ecological systems where policies were implemented. Lack of appropriate data was a key obstacle to policy evaluation, and studies emphasised the importance of robust surveillance infrastructure in evaluating policies that tended to be implemented reactively, in response to an outbreak of zoonotic disease in animal or human populations.

Implications for policy and practice

The key role that the private sector and industry actors play in implementing policies to prevent zoonotic spillover is an important consideration for policymakers. Our findings suggest that many of these policies must be complied with by farmers – from subsistence and smallholder farmers to large corporations – as well as by other actors, such as hunters. Lack of awareness as well as financial costs of compliance among these groups present key barriers to policy success in this area. This set of stakeholders is complex as some may make very marginal profits, if any, and may struggle to afford the additional costs of implementing preventive policies. However, powerful actors and profitable industries are also involved, including large-scale farms and primary resource extraction enterprises [ 22 ]. Acknowledging the differences across these stakeholder groups, and in particular assessing their capacity to bear some of the costs related to prevention, emerges as crucial in successful policy implementation.

Finally, our findings highlight the importance of disease surveillance in efforts to reduce the risk of spillover events. As well as acting as an early warning system, surveillance provides a source of data to evaluate the impact of preventive policies. We found the availability of surveillance data to be a key enabling factor in evaluating policies. In addition, close collaboration between agencies responsible for disease surveillance and control efforts was key to policy success. National surveillance efforts, as well as cross-country collaboration to support global efforts, such as the United States Agency for International Development’s PREDICT program supporting surveillance in areas at high risk for zoonotic disease outbreaks [ 124 ], must be sustained and expanded. In complex areas such as the prevention of zoonotic spillover, approaches to surveillance which encompass risk factors and transmission pathways [ 125 ], as well as One Health surveillance systems which harmonise and integrate data collection and analysis from across human, animal and environmental sectors [ 126 ], are promising approaches to developing surveillance systems that support risk. This context also involves a need to strengthen surveillance capacity in remote and rural locations, as communities living in these contexts may have exposure to numerous pathogens of wildlife origin. This will require strengthening clinical and diagnostic capacity in these settings, as well as engaging with stakeholders such as community human and animal health workers and wildlife or national park rangers [ 127 ].

Comparison with existing literature

This review sought to map the range of policies implemented to reduce the risk of zoonotic spillover, and the various approaches taken to evaluation, and identify factors behind the success and failure of policy implementation and evaluation. Due to this broad scope, comparing relative effectiveness of policy interventions was challenging. Existing systematic reviews with a more specific focus could apply meta-analysis to determine which interventions were most effective. For example, a review of market-level biosecurity measures aiming to reduce the transmission of avian influenza found that reducing market size, separating poultry species, cleaning and disinfecting premises, closing markets and banning overnight storage were highly effective interventions [ 45 ]. However, our findings suggest that studies focused on the control of avian influenza dominate the literature in this space (55 out of 111 evaluated policies), and many of these are focused on market-level measures. Systematic reviews focused on other approaches to reduce spillover risk, such as on-farm biosecurity [ 47 ]; biosecurity for backyard poultry rearing [ 46 ]; and community-based interventions [ 28 ] comment on the paucity of high-quality evidence around the impacts of such approaches. By taking a broad perspective, we hope our findings will provide policy options for consideration in a number of contexts, and guide researchers in focusing their efforts on areas where evidence is lacking.

Strengths and weaknesses of the study

To our knowledge, this is the first attempt to systematically identify and document evaluations of policies aiming to prevent the spillover of zoonotic pathogens into human populations. However, because of the complex drivers of spillover events, some potentially relevant policy evaluations may be excluded where their outcome measures are too far removed from zoonotic spillover. While relevant, such evaluations will be difficult to systematically identify as they make no reference to zoonotic disease.

In addition, this review focused on policy evaluations that have been reported in the peer-reviewed literature and the grey literature published by international agencies and organisations working on these topics. Policies that have been implemented but not evaluated, or evaluated but not published in these literatures, will therefore be excluded from this review. As a result, potentially effective and important policies in the prevention of zoonotic spillover events may not have been identified. However, we hope that the findings from this review will highlight these gaps in the evaluative evidence. We also hope that this review, by extracting practical dimensions, such as study design, outcome measures and the challenges encountered in the evaluation process, will support policymakers and researchers in carrying out further policy evaluations in this space.

Unanswered questions and future research

Our findings highlight several important gaps in the evidence. First, while observational evidence emphasises the importance of upstream determinants such as environmental and ecosystem health in the increasing rate of zoonotic spillover [ 1 , 15 ], we only identified a single evaluation of a policy attempting to target one of these upstream determinants: an evaluation carried out in China to assess the impact of the Ramstar wetland protection program on avian influenza in migratory waterfowl [ 66 ]. This study found that proximity to protected wetlands reduced outbreak risk. Authors hypothesised that this effect was due to the separation of wild waterfowl and poultry populations and the diversion of wild waterfowl away from human-dominated landscapes and toward protected natural habitats. Our findings support existing calls for more quantitative and mechanistic studies of the impact of interventions supporting environmental and ecosystem health on zoonotic spillover risk [ 128 ], as well as calls for greater integration of the environment into One Health research, policy and practice [ 31 ]. Further evaluations of environment and habitat protection policies would strengthen our understanding of this area. In addition, the impact of policies to reduce deforestation or expand forest coverage, such as China’s Grain-to-Green program [ 129 ], on the spillover pathway could be evaluated. Such evaluations might consider potential unintended consequences, as these policies could promote healthier wildlife populations with better disease resistance, but may also facilitate wildlife population growth and higher rates of wildlife-human encounters [ 130 ].

There is also a lack of evaluation of policies targeting infection intensity and pathogen release in either wildlife or domesticated animals. These could include approaches such as improving animal health and welfare to make these populations more resistant to disease [ 13 ]. While arguments have been made for strengthening legal structures supporting animal welfare in order to reduce the risk of zoonotic pathogen transmission [ 131 ], there is a need to evaluate policies that take this approach.

Our review found publications evaluating a wide range of policy interventions spanning the spillover pathway, including habitat protection; trade regulations; border control and quarantine procedures; farm and market biosecurity measures; public information campaigns; and vaccination programmes for wildlife and domesticated animals, as well as human populations with occupational exposure to animals. A wide range of governance sectors implemented these policies, highlighting the prevention of zoonotic spillover as a cross-sectoral issue, though most policies were implemented by a single sector. Our findings highlight the importance of industry and private actors in implementing policies to prevent zoonotic spillover, and the need for thoughtful and effective engagement with this wide range of actors, from subsistence hunters and farmers through to industrial animal agriculture operations to address their concerns through a range of incentives. We also identified the centrality of surveillance data in evaluating policies that are often implemented reactively, and effective collaboration between surveillance and control operations as a central factor in successful policy implementation.

Data Availability

All data generated or analysed during this study are included in this published article and its supplementary information files. Analysis code for descriptive characteristics of included policies is available on GitHub.

Abbreviations

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Acknowledgements

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CCA, JC and TLP acknowledge internal research support from York University. MW and CCA acknowledge internal research support from the Dahdaleh Institute for Global Health Research. KML acknowledges funding from the Canadian Institutes of Health Research through a Health System Impact Fellowship. AY is funded by the BBSRC through the Mandala project (grant number BB/V004832/1). AMV acknowledges support from York University through a York Research Chair in Population Health Ethics & Law. This review was undertaken as part of a project funded by the Canadian Institutes of Health Research, Grant Reference Number VR5-172686. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.

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Clifford Astbury, C., Lee, K.M., Mcleod, R. et al. Policies to prevent zoonotic spillover: a systematic scoping review of evaluative evidence. Global Health 19 , 82 (2023). https://doi.org/10.1186/s12992-023-00986-x

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The rapid legalization of marijuana has greatly affected this country, and it would be foolish to not acknowledge that. The legalization has led to widespread changes in the criminal court system, a new cultural acceptance of the substance, and one of most debated topics in modern American politics. This literature review aims to synthesize five different scientific articles about marijuana. These articles focus on different aspects of marijuana. Some of the articles focus on the physical effects of the substance, while others focus on social situations (like marijuana in the workplace). Two conclusions can be drawn from the five articles. One, marijuana is detrimental, despite the popular belief that it is not; two, much more research is needed in this area. Finally, it is important to note that all five articles are unbiased, and they are not written by politicians, policy makers, or opinionated journalists.

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Dai, J. (2020). Medical Marijuana in the Workplace. SAM Advanced Management Journal, 85(3), pp. 47–54.

Kancherla, N., Jeyanthi, K., Abbas, R., Sathi, T., Upadhyay, A., & Garlapati, S. (2021). Cannabis associated mental health effects: A review. Journal of Pharmacy and Bioallied Sciences, 13(6), pp. 943–976.

LaMotte, S. (2023, August 14). Many Americans wrongly believe exposure to marijuana smoke is safer than tobacco, study finds. CNN Health. https://www.cnn.com/2023/08/14/health/marijuana-smoke-wellness/index.html

Nielson, E. M. (2023). Marijuana dependence. Salem Press Encyclopedia of Health.

Śledziński, P., Zeyland, J., Slomski, R., Nowak-Terpiłowska, A. (2019). The adverse effects of marijuana use: The present state and future directions. Journal of Child and Adolescent Substance Abuse, 28(2), pg. 65-72. https://doi.org/10.1080/1067828X.2018.1561580

Wadsworth, E., Leos-Toro, C., & Hammond, D. (2020). Mental health and medical cannabis use among youth and young adults in Canada. Substance Use & Misuse, 55(4), pp. 582–589. https://doi-org.proxyeast.uits.iu.edu/10.1080/10826084.2019.1691594

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